Discussion:
Digest for cmlhope@googlegroups.com - 2 updates in 1 topic
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NICK WOODS
2016-09-30 16:42:55 UTC
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We're happy to hear you're on the mend, Marty.  It's been good to read other persons updates in their lives of CML and family changes, etc.  Sending sympathy to those whose family members have died within the past few months.  It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've posted it.  Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps?Or have large muscle wasting?Thanks, Elizabeth Woods Nick's wife

On Friday, September 30, 2016 5:18 AM, "***@googlegroups.com" <***@googlegroups.com> wrote:



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- Angie, your card - 2 Updates
Angie, your card
| ANGELYN ESDERS <***@rogers.com>: Sep 30 12:20AM

You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie
 
From: Marty Gartenberg <***@gmail.com>
To: ***@googlegroups.com
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness.
18's,
Marty--
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| Marty Gartenberg <***@gmail.com>: Sep 29 08:45PM -0400

Angie,
 
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
 
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
 
Oh Angie don't worry we will get there.
 
18's
 
Marty
 
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bkbarney via CMLHope
2016-09-30 16:51:05 UTC
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HI Elizabeth,


Just a note about muscle wasting and the TKI's. While they affect each of us differently, there is a clear connection between these meds and muscle wasting, cramping as well with Gleevec, sprycel and others. so, Nick is not alone...you might want to ask his doc to do a CPK blood test to see if it is elevated. There are meds, and things one can do and take to inhibit the inflammatory process. If muscle is wasting it is processed through the kidneys, so long term, this can effect the kidneys so they need to be watched as well... I like to be on the preventative side of things if possible...This is not meant to scare anyone, knowledge is power to us all, and it helps us to advocate for ourselves with our doctors..


Love and blessings to all, happy New Year to those who are celebrating. "'Shana Tova" to each one of you. We truly are blessed to still be here and to have one another..


I continue to go through hard times, like some others..just had angioplasty. They informed me at U of C that they are now studying the effects of TKI's on advancing coronary artery disease...I have normal cholesterol and I am young. But I do have a bad family history..




More later when I feel better..


Have a great weekend everyone..


18's..Beth



-----Original Message-----
From: NICK WOODS <***@prodigy.net>
To: cmlhope <***@googlegroups.com>
Sent: Fri, Sep 30, 2016 10:42 am
Subject: Re: [CMLHope] Digest for ***@googlegroups.com - 2 updates in 1 topic



We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and family changes, etc. Sending sympathy to those whose family members have died within the past few months. It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers.


Nick's got a Zauve's O Club number, but it's been a while since we've posted it. Does anyone have a list?


Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife







On Friday, September 30, 2016 5:18 AM, "***@googlegroups.com" <***@googlegroups.com> wrote:










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Angie, your card - 2 Updates


Angie, your card



ANGELYN ESDERS <***@rogers.com>: Sep 30 12:20AM

You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie

From: Marty Gartenberg <***@gmail.com>
To: ***@googlegroups.com
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness.
18's,
Marty--
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Marty Gartenberg <***@gmail.com>: Sep 29 08:45PM -0400

Angie,

There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.

Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.

Oh Angie don't worry we will get there.

18's

Marty




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lrc lrc
2016-09-30 20:58:41 UTC
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Gleevec has a big history of muscle cramps, especially in the hands and the
legs. Gleevec also has side affects that include skin that is thin, white
rings around the eyes, water retention around the eyes to name just a few.
I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have
died within the past few months. It's been so tough on each CMLer as we
age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
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- Angie, your card
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Angie, your card
<http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email>
You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I wanted
to thank you for your kindness.
18's,
Marty--
--
[CMLHope]
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
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ANGELYN ESDERS
2016-10-01 03:06:54 UTC
Permalink
This is all I have...
     ZERO CLUB MEMBERS
No. Name Surname City St Comment
1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida
2 Linda Bartlett Cody WY Gleevec
3 Jeanelle Street Nederland TX 
4 Vinny Carrasco   
5 Rob Gebauer Roseville CA 
6 Suzan McNamara Montreal QU Petition originator.
7 Cynthia Duty Arlington VA Mother is Kim
8 Dorothy Emery Denver NC Helped with album
9 Jill Jones   Husband is Richard
10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore
11 Bob Andrews   Relapsed. Was in accellerated.
12 Margie Bovee Saline MI Sees Dr. Schiffer @ Karmanis in Detroit
13 Jane Graham Seattle WA 
14 Marilyn Phillips Buckhannon WV Son Tim writes.
15 Chris Posadas   Laurie?
16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989
23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri
33 Angelo Arizzo   Goes to MD Anderson
34 Scott Read Kaysville UT 
44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly in Chapel Hill.
45 Alayna Leppke  OK 
47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 in jun03
49 Dave Schulz Detroit MI Had a self transplant.
50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus
52 Bob Aylesworth St. Petersberg FL Wife Dawn
54 Bob Stewart Granger IN Wife Pat
58 Judy Orem Portland OR 
59 Pete Pabon Palm Harbour FL Moved from Bayside NY
60 Ken Allen   
61 Riza Yilmabasar   
62 Lorraine Rollo   
64 Dave B.   INF only
65 Jennifer Gangloff   
66 Nancy Belcher Alameda CA Liver toxicity
67 Thea Rosen   Dr. M. Shurafa, Henry Ford
69 Kristin Olson Lieberman San Marino CA 
70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml
71 David Cranmer Shelburne VT BMT relapse, wife is Allison
72 Abe Weintraub   father in law Barry
73 Fposades Fish   BMT
74 Dianne Ness Mpls MN Husband Paul, INF
75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC
76 Angely Esders Brantford ON Canada...Gleevec
77 Dana Huddleston   
78 Richard Schenk Harpers Ferry WV 
79 David Greenberg Hobart IN 
80 Sylvia Guenther Toronto ON 
81 Harmony Jaursch   
82 Susan Geller Chicago IL INF, daughter Jodi has CML
83 Sandra Craine London UK lives in UK
84 Victoria Bartling   
85 Marajou Janse The Hague Netherlands 
86 Steven Flack San Diego CA 
87 Mithun Kamath New Orleans LA 15yr, dad is Burde
88 Linda Ginn   age 44
89 Phylecia Wilson   
90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith
91 Steve Harvey   
92 Georgia Coats Dearborn MI age 28
93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian
94 Tracy van Houwling Leiden NL 
95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz
96 Bruce Weinstock Richfield  MN Had a BMT. Relapsed. Gleevec
97 Terry Lowell Littleton CO 
98 Doug Tan Kuala Lumpur Malaysia 
99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec
100 John Calderwood Vancouver BC Still waiting. 1% left.
101 Susan Carrow Buffalo NY 
102 Zavie Miller Ottawa ON 
103 Amy Fischer Boca Raton FL 
104     Unlucky for Japanese
105 Ken Ito  Japan 
106 Darlene  Shepherdsville KY 
107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02
108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 360-785-0907
109 Steve Robinson Longview WA Wife Jenifer, met at LTN
110 Syad Ansari   
111 Lisa Martinez Tampa FL 
112 Gale Woliver (Bacon) Dallas TX 
113 Genie Boutchia Plymouth MA  Dana Farber, Dr. De'Angelo
114 Chris Duce San Diego CA His mom is Paty
115 Bonnie Liebergot Chevy Chase MD harris.liebergot.nist.gov
116 Sal    
117 Anna Powers   
118 Doris Kentucky  KY 
119 Paula Sapinski   dxd 5/4/2001
120 Joe Stark Grove OK Wife Mary, going off G  May 2004
121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 0% in 3 mos.
122 Beth Petrich   From European Site
123 Shelley Orenstein Boca Raton FL 
124 Max Hoefler  Germany 
125 Keith Sharrock   
126 Sydna&Bob    
127 Richard Wilday   
128 Caroline MacDonald   Husband, Steve
129 Keith Danby   
130 Ruth Waldhauer La Honda CA 
131 Eugene Leyvi   Gene int then gleevec
132 Mark Frazer  Australia see website
133 Roxianne    BMT
134 Roberta Troyer Fallston MD From Jerry's list, showing resistence
135 Jirapon Chaimongkon Bankok Thailand 
136 Lloyd Peterson   Brother has CML Steve
137 Ron Vietti Bakersfield CA Pastor at Valley Bible Fellowship
138 Laura McCourt   
139 Sandy Butler   
140 Mary    
141 Donna Dunn Tuscon AZ Cousin Avis Allen writes
142 Bob Farmer Bremmerton WA BMT 1993, Zero 1996, pH+ 1997, pH- 2000, see http://oc.itgo.com/
143 Judy Levine  PA 
144 Bill Buckberry Hendersonville TN Wife Sue. 300mg Gleevec
145 Jehuda Driori Tel Aviv ISR His son Shai writes
146 John    From Jerry's site
147 Al Rhodes   Wife Lynda, at VA hospital
148 Bob Whitaker South Florida FL Wife Odile
149 John Wall Fayetteville AR 1 yr on STI
150 Doug Jensen Hood River OR Patient 13, found him in CBC news doc
151 April Bowers   See Miles
151 Miles Bowers Jacksonville FL Daughter April Bowers Davis
152 Jamie Malizia Ottawa ON Wife Karen Leggettdoes all the e-mailing
153 Holly Baker St. Louis MO 
154 Peter Miles Southport GB From euro list. BMT
155 Sourabh Ghosh Calcutta India 
156 Shannon  Sydney Australia 
157 Nico Oliver Capetown SA 
158 Mithun Kamath New Orleans LA Dab Burde is a prof of pharmacology
159 Joyce Mondgeau Jacksonville FL 
160 Fusun Ilkay London UK 
161 Steve McMillan Katy TX Wife is Nancy. Peg inf, then Gleevec
162 Mike Harris Silver Spring MD Wife Kimberly Pendergast Harris, on Gleeevec for 2 years
163 Tamara Lam Hertlelia ISR Hydrea only
164 Benyamin Reinitz Jerusalem ISR BMT, relapse
165 Yehuda Drori Ramat Gan ISR Gleevec
166 Marko Cohen Natanya ISR INF 12 years, Gleevec 9 mos
167 Ruty Glik Natanya ISR INF, Gleevec
168 Uri Cohen Sheva ISR Gleevec
169 Yossi Tavor Natanya ISR INF 2 mos, Gleevec 3 mos.
170 Ronit Shnider Rishon Lezion ISR BMT, relapse, Gleevec
171 Yoram Linman  ISR Gleevec
172 Kris Ward T. Louis MO INF, CHF, Gleevec
173 Niels Hansen-Trip Ottawa ON INF, Gleevec. 106 trial
174 Neslihan Tosun  Turkey Nesli, study in Germany, 0 after 3 mos.
175 Eugene Leonenko Moscow Russia From Liz Rees
176 Jim Studeman Davenport Iowa Wife  Debby
177 Mark Owens Shreveport LA FISH after 6 mos
178  Ed   Wife has CML. From Jerry's site
179 Roger Baker Hammersmith GB From Rees
180 Ian Sharpe  GB From Rees
181 Laura Geelhoed Grand Junction CO INF
182 Carol Kalat  MI From Gleevec group
183 Jeff Shaffer Louisa KY INF 8 yrs, Gleevec 6 mos
184 Mae Moyer Plantation FL GIST, from Gleevec list
185 Markus Euskirchen  Berlin Germany From Gleevec group.
186 Ollie Odaka   After 6 mos. On Gleevec
187 Lynne  Andrews   
188 Cheryl Smith   
189 Duree Trautwein Houston TX Husband is William, Baylor.
190 Cindy Lewis Flower Mound TX Fairfax VA originally
191 Dona Dunn Tuscon AZ Posted by Avis Ferguson
192 Dorothy Huffstetler Kings Mountain NC Dot from Gleevec group.
193 Jim Logan Fox Point WI From STI Gazette
194 Charles Pignataro Los Angeles CA 
195 Jeff Wolf Haymarket VA Gleevec/inerferon combo. Dr. O'Dweyer
196 Rachel Workman   Mother is Julie, BMT, DLI, then Gleevec
197 Mariela Genta  Uruguay 
198    MI 
199 Doug Kroeger Basking Ridge NJ Wife Gail
200 Sandra Parr Austin TX From ACOR, husband David
201 Stephanie Boyd Heath OH 
202 Clyde Furumoto La Palma CA Carol is wife
203 Chris Frailey Marion IL 
204 Susan Hertzog Dillsberg PA 
205 Margot Menefee Wichita KA Husband Fred
206 Zazzy Hanson St. Maries ID Name is Carol
207 Jeannie Matthews Medford OR Gave her a # at 99.5 %
208 Shawn Beller Sylmar CA Wife is Heather, Holy Cross Cancer Center, Mission Hills
209 Benny Rocillo San Andres Manila From Eva
210 Jim's friend    
211 Helene Anderson Oslo Norway Mother is Rune
212 Bruce Crabtree Kansas City KA Wife Jeannine
213 Sandra McKerman Tuolumne CA Looking at 3 cells.
214 Juscelino   Brazil From Jerry's site
215 Hennie Bosch  Netherlands 
216 Mike Westland Belleville WA Firefighter
217 Julie Baumann Elmira NY After 6 mos on Glevec
218 Dennis Dricken South Bend WI 
219 Earl Harford Pequot Lake MN 
220 Ellen Penrod Winetka IL 
221 Ken Sierzan Mayville MI On interferon. Wife is Kay. Switch to Gleevec
222 Toni Leib   
223 Suzanne Dreger Escanaba MI 
224 Melinda Kerner Fairfield CA Died in Aug 04. Comlications from BMT
225 Betsy Pitzman Homer AK 
226 Emily Guerrant Ellensburg WA Age 24
227 Susan King South Windsor CT 
228 Steve Sprague Staten Island NY Umbilical Cord Blood transplant
229 Dave Lukaszewski Milwaukee WI From ACOR
230 Alice Kjorness Cheyene WY 
231 Guy Sponaugle Fairfax VA 
232 Dane Tessler Treasure Is FL Daily photo
233 Larry Wickware Oaklahoma City OK Wife Tiffany - Larry had a BMT
234 Kevin Kottrel Lawrenceburg IN 
235 Prescilla  Atlanta GA 
236 Carol Kalrak Dearborn MI 
237 Joe Pfannenstiel Inman KA 
238 Mike Emberton Llandudno North Wales, UK From European site
239 Jim Lynch Pittsburg MO Wife is Donna
240 Daniel Golden Springfield MO Wife is Kelly, going for transplant
241 Ellen Somerville Berkeley Heights NJ Friends with Kathy
242 Eva   Manila Waiting for confirmation
243 Colleen Kanieski   
244 Beau Turner Bateau Bay NSW, AU 
245 Betsy Fogg Boscawen NH 
246 Yehuda Drori Tel Aviv ISR Son is Shai
247 Rick Pata Oshkosh WI UofW, Madison,WI
248 Tony Garrison San Antonio TX 
249 Michele Johnson Orlando FL 
250     
251     
252 Meg Scata Middleton CT 
253 Rakesh Doshi Cincinnati OH 
254 Alex B Chicago IL From euro site, inf first
255 Ros and Dave    From European group.
256 Elizabeth Rees London GB From European group. Goldman,Hammersmith
257 Connie Holifield Laurel MI From ACOR, Dr. K. MD Anderson
258     
259 Jennifer Hudspeth Noblesville IN 
260 Virginia Gardner Claremont CA UCLA trial. After 3 years.
261 Sonia Arnedo Mexico City MX 
262 Jim Cook Chateaugay NY Daughter is Stephanie Leffler
263 Bryce Onaran Centreville VA Aunt Leslie Tetreault
264 Dwarka Rathi   
265 Dorothy  Goldstein Natanya IL 
266 Ron Eaton   Waiting
267 Jim Downs Palm Desert CA Linda's friend
268 Kim   KR 
269 Jody Capik   
270 Matt Ruggiero   Relapsed 6/02, cord blood trans 3/03
271 Sara Piotrowski Mondovi WI Husband Norbert publishes 'Keep America Dancing
272 Don    Treated at OHSU
273 Bill Teague  SC Daughter Jessica
274 Carmen  Florence Italy On 300 mg
275     
276 Richard  Jones Rochester NY Wife Deanna
277 Karen Andrews Harvard Mass 5 kids, relapsed in 04, RAD trial
278 Maggie  Plano TX 
279 Jane Todd Springfield VA Turtle
280 Guy Sponaugle   
281 Dave Lukaszewski Elizabeth CO Sees Dr. Link in Litleton CO.
282 Bud Huth Guelph ON Lori's dad
283 Tina Sierra Prospect CT Husband Rick
284 Karen K   Maybe
285 Joey  Brooklyn NY From euro group
286 Jesper KjÀllquist  Sweden Via BMT, from euro group
287 Mike Sample  IN 
288 Rev Andrew Climpson  UK 
289 Janet Hansen Ithaca NY Ancient Lurking Turtle
290 Barbara Heathcoat Raleigh NC Interferon
291 Eugene Leonenko Moscow RU From europen group
292 John Wheeler Nacogdoches TX Wife Nancy, 800mg, stopped due to pain
293 Susan Armour  NJ 
294 Keith Sharrock  UK From petition messages
295 Patty Preston Derbyshire UK From petition messages
296 Aaliyah Smith  UK From petition messages
297 Kristin  Wolf  UK From petition messages
298 Nigel Frost  UK From petition messages
299 Lorrraine Rollo  UK From petition messages
300 Nancy Cogan Eugene OR Reserved
301 Jeannie Douglas  UK 
302 Jan Geissler Bietigheim GER From Anjana
303 Stacy Coale Birmingham Alabana Age 28. Teacher
304 Carol Miller St. Cloud FL From Gleevec group
305 Nadine Vangelisti   From ACOR, Dr. K. MD Anderson
306 Lisa Boyce Fairmont WV Dr. Coonley, United Hosp Clinic, Clarksburg, Wva
307 Bruce McGarth Bryn Mawr PA Age 65
308 Linda Greeneberg Palm Springs CA 
309 Joe  Jurkovac   
310 George Nearchou Melbourne Australia 
311 Dianne DeCesare Mineral Ridge OH 
312 Henny Bosch Amsterdam NL Husband Annelies?
313 Paul Barsevskis Toronto ON Wife Lyn. Paul died.
314 Kathy Brown Somers CT Had Essential Thrombocytosis
315 David Smith   Wife has CML. From Jerry's site
316 Suzanne Decker Gladstone MI 
317     
318 Ed Ranier   Wife is Rosemary.
319 Laquita Neill Carrollton M Rob manages the site
320 Ellen Froyd Carpinteria CA 
321 Jeanne Burns Minneapolis MN BMT, relapse
322 Yvonne Heimann NewNew Braunfels TX BMT relapse
323 Don't display See Russ   
324 Ginger Jarnagin Houston TX BMT relapse
325 Dan Sponaugle Elmhurst IL Wife is Laura Walsh
326 Jeffrey Chan  NJ 
327 Jim Bloomquest Ellijay GA Zero on interferon
328 JR Hill Kansas City MU From Gleevec Group
329 Joe Nishide Kishiwada,Osaka JP 
330 Ken Roberson Asheville NC Bad neuropathy
331 aelbaw    Brother has CML Steve
332 Dennis Gasgarth Leland, Lancs UK Failed auto SCT
333 Yvonne Poulton Newhaven, Sussex UK 
334 Gina Demase Chicago IL 
335 Thomas Brand Minneapolis MN From ACOR group, son has CML.
336 Sarah Hulburt   Dad is Bob. From ACOR
337 Alice Cramden Springfield MO Hsp70 trial
338 Geri Sehnert Rochester NY BMT, then relapse.
339 Wendell Bailey St. Augustine FL Orig from Minnesota
340 Sue Dickerson  UK from eur site
341 Marcelo Filipe Simoes Cascais PO From Eur. Site.
342 Patricia de Almeida Goncalves Lisbon PO From Eur. Site.
343 Joan Hume Sydney AU 
344 Maria Carpenter   
345 Jody Porter Los Angeles CA 
346 Rodney Shelly Shingleton MI From ACOR.
347 Douglas Yost Eden Prarie MN From Gleevec, mom is Laurel, fathered a son
348 Ed de la Cruz-Munoz Miami FL Brother is Jorge
349 Brian Land Dallas TX 
350     
351 Tracey In Canada Ottawa ON Good friend
352 Lynne  Andrews  MA Trisomy 8
353 Travis McArthur  WI Father is Kent. JW
354 Anita Rowland Orangeville ON Came to my hearing
355 Mike Liston Pittsburg CA Wife is Jeanie
356 Jacki Holcomb Austin TX 
357     
358 Felice Bombaci Torino IT 106 on inf.
359 Jeannie Ingalls Greenville SC Husband Paul
360 Erico   TW 
361 Sharon Morris Running London Marathon GB Sees Hochhaus
362 Peter Lim Yeng Chuan Singapore  
363 Judy Martyn   Niagara Fall Ball. Ken is husband
364 Johan Drotskie Johannesburgh SA 
365 Janice Amason Lineville AL 
366 Dilar Vermeulen Mom is Dorita NL 
367 Joan Ann    Via mini BMT
368 Davina Magill From European site  
369 Joseph  From European site  
370 Kate  Debrovnik CR 
371 Deana Brenner Staten Island NY Marty's friend
372 Peter Jaeggin Oakville ON T.O. Pete
373 Susan Buchman Springbrook WI From Jerry's site
374 Pramila Khanna   Daughter is Vivek
375 Viviane Quadri RUDOLFSTETTEN Switzerland From European site
376 Pamela    From Jerry's site
377 Shelly Pate Joplin MO From Jerry's site
378 Bob Fox   From Jerry's site
379 Richard Elledge Hope AR Wife, Dani
380 John Owen Solana Beach CA From Jerry's site. On 300mg
381 Travis Northcote San Diego CA Wife is Kate Blease
382 Juan OVALLE Long Beach CA 
383 Dave Milton   From European site
384 Jean Yoko Craft Fruitvale BC Husband Donald
385 Walt Seldon Severna Park MD 
386 Keno Elsen Frankfurt DL 
387 Alfredo Campos  BR 
388 Ralph  Robertson   
389     
390 Bev Belsha Milwaulie WI 
391 Tamara Norton   
392 Cheryl Simoneau Pointe Claire QC Born in Santa Monica
393 Rebecca Schneider   
394 Steve Bowser Leicestershire GB Partner Lisa
395 Marge Valdmann  ES 
396 Danny Qin Manilla  From Eve
397 Phil Long Plymouth Meeting PA 
398 Shonoa Ruddick Santa Cruz CA 
399 Judy Gingrich Lancaster PA 
400 Judy Wilson Bronxville NY Husband James
401 Barbara Stanley Mesa AZ 
402 Paul Somerville San Francisco CA Races motorcycles
403 Nancy Meyers   Husband is Michelle. ACOR
404 Rajdeep Singh Delhi India From Anjana
405 Orit Golovity  IS From Leeora
406 Marlene Ellman   
407 Holly  Pittsburgh  
408 Erin Loeher Royal Oak MI From Gleevec group. Hodgkin's 1994
409 Debbie    From Jennifer's site
410 Joyce O   From Jennifer's site
411 Mariela Hillenbrand   From Jennifer's site
412 Ed Draughn Morrow GA From Jennifer's site
413 Vance Werner   From ACOR
414 Michel Huron   
415 Judy Harvel Lancaster VA from acor
416 Kris Stebins   
417 Marc  Macks Baltimore MD unnamed
418 Francisco Olivera Porto PO 
419 Nina Woodroff   Pregnat. Mother is Denise
420 Keith Sharrock  UK From Sandy
421 Richard Wilday Worcester UK From NICE
422 Jayne McCarthy Scottsdale AZ From ACOR
423 Bruce Collins Washington DC Fron ACOR
424 Suzanne Schwartz   From ACOR
425 John McLeod Bellevue WA 
426 Dimitri Voutselas Athens GR BMT in 1992
427 Debbie Thomas  NJ Husband is Danny
428 Tami Haupt   From ACOR
429 Steve Bryan   From Jerry's site
430 Luis Montesino   
431 Ruth Hofman Afula ISL from Giora
432 Frida Batman Afula ISL from Giora
433 V Srinivasan Chennai, Tamil Nadu India son is Venky
434 Endrias Afework El Sobrante CA From Etheopia
435     
436 Tom Lehman Toronto ON Transplant at PMH
437 Benyamin Javadi  Iran Father is Ahmed, Dr. is Zonovi
438 Marianne Maxey   
439 Kathleen McQuillin Soquel CA 3 yrs on inf
440 Jusilo Lobao Aracaju BR 
441 Freeda Barry   From Gleevec List
442 Rob Harless Solona Beach CA Wife is Kelly
443 Terry Dodge West Palm Beach FL Now on BMS drug.
444 Trisha Brennecke Parsons KS 3.5 years
445 Valerie Amo Ann Arbor MI 
446 Frank Vitello   BMT 1/99
447 Andy Grasis Tuscon AZ Lic Plate #
448 Eran Thomson Bondi Beach, NSW AU Luke the Rat
449 Johan van der Veen Luxembourg EU 
450 Tracy Keats Suffern NY Very early dx, moving to Scranton
451 Marcia Beaudry   FISH relapse?
452 Fred Jung Cazenovia NY 
453 Joyce Wilson Harpers Ferry WV 
454 Ronald Bryan Stoney Creek VA Via BMT, wife Dottie
455 Michiel Dubois Amsterdam NL Met him in Dec03
456 Bob Samuel  UK 
457 Peter Quartuccio   
458     
459 Jan Drewett Gold Coast, Qld AU Special needs co-ordinator
460 Julia Valentine Douglas Isle of Man UK From European site
461 Jim Rodeghier New Lenox IL 
462 Steve Boulton Southampton UK From European site. BMT. Wife is Sarah
463 Neil Strong  UK From European sit. Wife has CML
464 Jean   UK From European site. BMT. Wife is Sarah
465 Dave Feltman Dallas TX On chat
466 Erika de Haes  UK 
467 John    From Jerry's site
468 Sara Byne   From Jerry's site
469 Darin Bell Vancouver WA From WSJ
470 Andy Skidmore Enschede NL 
471 Bill    Wfe Marge
472 Lori Wasserman Derwood MD On INF
473 Jim    From Jerry's site
474 Pat  Manning Loscoe, Derbyshire GB From Eur. Site
475 Cathy Lea Toronto ON From album. BMT relapse.
476 Rakesh Gupta New Delhi India 
477 Mark Stasium Portland ME Wife Sue
478 Ho-Leung Ng Oakland/Berkley CA Great researcher
479 Louis Nault Montreal QC 
480 Diane Manning   Looking for generic gleevec. Phillip
481 Kate Watt Montreal QC From Gleevec
482 Dave Jamrog Manchester NH From Gleevec
483 Susan Lowencamp Hartford CT On HSP70 trial
484 Cynthia    Inf first. From Gleevec list
485     From Gleevec
486 Richard Soucey Waterbury CT From BMT
487 Shirley Krager   
488 Mary Knotts Madison AL 
489 John Doerr St. Louis MO 
490 Glenn Fuller San Francisco CA trisomy 8, monosomy 7
491 Linda Baker   From European site
492 Jean    From Jerry's site
493 Laura Gonzalez   From Jerry's site
494 Joan Clements Newport Heights CA Mary Toole's friend
495 David Roth  OH Wife Ruth. 17 yrs
496 Mary McKinley Charlottesville VA From ACOR site
497 Rakesh Gupta   From Gleevec
498 Scott Leslie   
499 Wilma van Voorthuisen  NL Met at summit
500 George Lazarowitz London ON 
501 Judy Prusky Calgary AB 
502 Stephanie Sylvestre Montreal QC 
503 Pam May Devon UK Husband John does the email.
504 Mary Toole Mission Viejo CA 
505 Miles Denham J. Aiken SC From ACOR
506 Dorothy    From Gleevec
507 Steve    BMT, European site. Wife is Sarah
508 Shirely Walkley Oxford UK From European site.
509 Christian Cavallero Miami FL From Miami Herald
510 Brett Ison   From Miami Herald
511 John Schultz Laguna Niguel CA From ACOR
512 Jean Casey Ferndale MI Triple therapy - Gleevec
513 Terry    From Europen site
514 Mary Hoglund   
515 BVR  Seattle WA From Gerry's site
516 HJ    From Gerry's site
517 Nat    
518 Maria Theresa Zenzes Mississauga ON 
519 Peter Geary Aukland NZ pacific1953
520 Nancy Sutton Norway Lake ME Roland is husband
521 Grace    From Europen site
522 Jacqueline Jarmusz Memphis TN Sister is Mary Ellen. Originally from Chicago
522 Mary Ellen    
523 Mary Jean Hoder San Antonio TX 
524 Alan Sago   Father is Jim Sago
524 Jim Sago   
525 Pam Truchon Germantown MD 
526 Valeriano Munoz Madrid ES Spain
527 Shari Drennan ElDorado KS 
528 Emile Fichault Repentigny QC 
529 Bob Budynas Oahu HI 
530 Richard Huffman Belton MO Dickie, vet
531 Mercedes Rodriguez   Daughter is Ana
532 Hans Friessmann st.augustin Germany From Jerry's site
533 Russell Borski Broomfield CO 
534 Brent Styles Blockhouse Bay NZ Dawn
535 Julie Lowsen  QC 
536 Bob Borland   
537 Tony Davis   Mom is Karyn
538 Tanya Feldman Manotick on 
539 David Michaels Oakland/Berkley CA 
540 Shaun Seaholm   Has chromosome 9 problem
541 Ross Shirran   From European site.
542 Ron Homan  NC From Jerry's site. Wife is Lynn
543 Randy Provart Blaine MN 
544 Theresa Migut Johnstowm PA 6 mo. On INF
545 Amy Lalonde Toronto ON 
546 Syed Nasir New York NY Only 7 cells. Saba Kali
547 Pirkko KELEMAN Tampere Finland 
548 Stefan   DE 
549 Amber Lynn Plath Menifee CA 
550 Kennet   DK From Jerry's list, wife is Christiana
550 Kennet Christensen Als DK From Jerry's site
551 Amy Clark Dallas TX 
552 Penny Rivers Cayman Island  
553 Esther Liben Montreal QC 
554 Elaine Schiavo   
555 Kat Miles Perth WA 
556 Dawn Penny   From ACOR
557 Julie Kennedy Hull QC 
558 Brian Walsh Cork IRL 
559 Stavros Beriatos Athens GR 
560 Mark Alleman Monroe LA Relapse after 3 yrs
561 Leroy Clayton Brick NJ from Gleevec site
562 Matt Worcester Chicago IL Wife is Elizabeth
563 David Bradley Interlochen MI 
564 Aaron Bullingham  UK Mother is Jayne, BMT
565 Stuart Lefebvre   Allen & Gail are parents
566 Andi    
567 Tammy Hunt Winter Park FL hoakierollerr
568 Vinnie Falgione Pittsburgh PA 
569 Janet    
570 Norm    600mg
571 Anna Grimm Midland TX 
572 Kathy Finnigan Cataumet MA 
573 Melinda Folse Slidel Louisianna From Jerry's site, mutations
574 Helen    From Jerry's site
575 Alison    European site
576 Richard Schempp Neilberg SK 
577 Chris Stickle Branchburg NJ 
578 Sharron Wallace   From Gerry's site
579 Carolyn Oehrle Louisville KY From Jerry's site
580 Lynne  Frankli  PA Zero after 11 weeks. Liver toxicity
581 Micheline Campeau   From Cheryl
582 jhill    
583 Brian Manning   From European site, wife Pat posts.
584 Susan Rosenthal Miami FL 
585 Jim    From Gleevec list
586 Sharon  Hudson MA 
587 Lisa Perry   
588 Larry Hicks   
589 Rodney    
590 Cindy LOUEY Melbourne AU 
591 Sandy Butler   From Jerry's site
592 Stan Ste Croix Barrie ON From Jerry's site
593 John Bonistalli Elliot City MD Wife is Dane, pregenant
594 Barbara Masters Grants Pass OR 
595 Chandra Singh Mumbai India From Ferry's site
596 Ed    From Jerry's site
597 Simone  The Pas Manitoba (Sunny)Priscilla is mom.
598 Carl Davies  PA 
599 Janet Greenberg Toronto ON Met her at Winter 2004
600 Jack Hooper Canto GA Jenny's dad
601 Valorie Reid Kalamazoo MI Fronm Jerry's site
602 Glenda Smith Joplin MO Fronm Jerry's site
603 Fides Putong   From Asian List via Eva
604 Valentina Gomez   From Asian List via Eva
605 Phyl D Cantom MI 
606 Julianne Harju MI  
607 Patricia de Almeida Dever   from European site
608 Marion Staplefeld Ryegate VT Moe
609 Annette Babb   
610 Krithika  Adimoolam Chennai India From Asian site
611     From Asian site. On inf. 12 yrs
612 Edna Boyd   
613 Don Adkins Colorado Springs CO 
614 Paul    coonass2112
615 Elizabeth Duley Kents Store VA CCR on INF, relapsed, then Gleevec
616 Chris Woodroff Problem with email address  European site
617 Ethan    Christina reports. European site
618 Esther Harper   European site
619 Donna Swart Auburn WA 
620     Doc wants her to go off Gleevec
621 Nancy Craig Gorham ME BMT. From Jerry's site
622 Mike Cleaves Port Republic MD Wife has CML. Was on GM-CSF and INF trials.
623 Stacey Atkinson   From European site
624 Sandy Weber Cincinnati OH From Asian site
625 Jill Jones Stourbridge, Midlands UK From European site
626 Matthew Loos Iowa City OW 
627 Robert Jackson San Francisco CA Wife is Sharon Parker. From Jerry's site
628 Dana Burba   800 trial at MDA
629 Nadine Lim   From Eva, Phillipines
630 Alen Glen Sayson   From Eva, Phillipines
631 Alona Garrido   From Eva, Phillipines
632 Steven Persaud NYC? NY Mother is Angelo
633 Charles Gilbert   Susan Zencka's dad. Turtle
634 Juergen Karl Frankfurt DE 
635 Christine Barthelemy  FR Has liver toxicity
636 Jimmie Phillips Hattiesburg MS 
637 Carlos Valentia Tuscon AX Cord blood, IM. From Tuscon newpaper
638 Paul Patterson Bartlesville OK Dr. wants to stop Gleevec
639 Bob Glover Hornsby AU From Asian group
640 Wayne Cox   
641 Don    
642 Gloria Dunford Westland MI 
643 Desnee Lynne McClarnan Swansea, Wales UK From European site
644 Ruth Collins   
645 Andreas Wertberg  DE from Asian site
646 Amy   AU From Perth, now in Georgia
647 Andrew Sklarz Yardley PA From Cheryl
648 Yvette Hyland Weston-super-Mare, Somerset UK From European. Jason's wife
649 Kathy Soloff Penn Valley PA From Asian site
650 Steen Lyngvig   From European site
651 Jessie Altura Calgary AB BMT from sister.
652 Josh    From Jerry's site
653 Rosanna Bernstein Miami FL Qult for Druker
654     
655 Chris Lambert   From Eur. Wife is Sarah
656 Mike Bernardino   From Jerry's site, keep confid
657 Jeff Vierstra    From Jerry's site. BMT
658 Lauren   AU From Jerry's site. BMT
659 Stephan   UK From Eur. BMT. Parents Neil&Sam 
660 Genevieve Russo   Her daughter has CML
661 Amanda Olivere Newark DE Jerry's site
662 Joan Porter Jacksonville FL 
663     Both are 82. Wife has CML. 200mg
664 Maximo Olivo Venice IT From Jerry's site
665 Nasir  Chestnut Ridge NY From Asian Group
666 Rory Collins   
667 Lynne  Nadal Vancouver WA From Jerry's site. 132 in Appreciation album
668 Elmer   HU 
669 Marie  Chapman   Frum Eur site. BMT
670     His father has CML. In appreciation album
671 Massoud    
672 Cindy    Paul #638 friend. Had a BMT
673 Tom    From euro site. Wife Karen
674 Rosey Brenan Vancouver BC Sister is Elizabeth
675 Susie Leech Port Lincoln AU 
676 Kathleen Verderber Southgate KY 6 mos in Naples, FL
677 Laura H Paducah KY From Jerry's site
678 Mark    From European
679 Jerry    From Jennifer's site
680 Ray Haines   From Jennifer's site
681 Kennet Geihsler Houston TX Called his son
682 Monique Kuijpers  NL Met at Milan meeting
683 David Pillow  UK 
684 Judy    From European site. See Patty Preston
685 Richard Jones  UK Brother has CML
685 Simon Jones  UK 
687     
688 Ed    From Jerry's site
689 Sara Byne Charlottesville NC From Jerry's site
690 Charley Morgan Ogden UT 
691 Janice Jackson  UK "European site. Had a mini BMT. http://homepage.ntlworld.com/dave.jackson4/homepage.htm
"
692 Lynne     
693 Darlene Lawless  UK From Europ site
694 Barry Stark   barryhuthut from chat
695 Amanda Lane   From Europ site. Wants a baby
696 Denis Hung   From Asian site
697 Pamela Levine  NY From Jerry's site
698 Philip Kruger Montville NJ From Jerry's site. Thank you
699 Judy Telford Melbourne AU BMT relapse after 11 years.
700 Bob Wilhelm   Wife Nancy. BMS trial. Desert Tortoise.
701 Sheila Durbin Utica KY Husband is David
702 Jim Johnson   
703 Dee    
704 Larry Moe Newbury Park CA Relapsed on 300 mg
705 Steve Silver Montreal QC Inf 9 yrs.
706 Don Tracy Sherman PA Nam Vet
707 Christine Finsand   ACOR
708 Valerie Scott   ACOR. In album.
709 Karen Sos   
710 Peter Stick    From Jerry. BMS trial
711 Suzanne Festa  CN From Asian
712 Chloe    3 yrs old
713 Morgan Blackford   6 yrs old, Michelle is mom
714 Eleanore Perkins   
715 Debra Moretz   
716 Jason Nagy   
717 Suzanne Festa   
718 Ron Lacy   
719 Masoud Seyedjalali   From Asian site
720 Vickie    From Jerry's site
721 Geeta    
722 Mary Hooker Bebton LA From PLWC ASCO site
723 Victoria    From Jerry's site
724 Eoghan Gallagher Strokestown IR From European site
725 Sultan   FR From Jerry's site
726 Derek Bergmann  UK From European site.
727 Richard Troxel Newhall CA 
728 Sergio Garcia Orange County CA 
729 Susan Dale  FR From BMT in France
730 Jim Simpson Winnipeg MA From European site
731 Denis Culligan Dublin IR From European site
732 Tonya  Atlanta GA 
733 Miles Levim   BMT
734 Dee (Doreen) Hedman Duluth MI 
735 Marilynn    
736 Sam    European site.
737 Barbara Marfleet   European site.
738 Marlene Curby   Low ANC. On Asian list
739 Marcia   ON Marcia is wife. From Jerry'e site.
740 Joyce Davis   European site.
741 David Landry   Debbis is his mom
742     Stuart is husband. Eur. Site
743 Ian Prudence  UK Kathy is wife. From Europ site
744 Melinda Pierce   
745 Dawn Cigainero Hooks TX Husband is Chris. From ACOR
746 Nathalie Doyle Contz les Bains FR Had a baby
747 Betsy Carlin Holmdel NJ Husband is James
748 Mike Siegel Cyclist. Newspaer Article  
749 m&m    
750 Eva Brubaker Upland CA On BMS drug
751 Michael Herring Atlanta GA Retired military. Back to school. Eur. Site.
752 Linda Scukins   European site
753 Paul Codrington Minster, Isle of Sheppey UK 
754 Carolyn  Bullard   BMT
755 Tommy  Tbone  From Jerry's site. BMT relapse
756 Nancy Chando Hurley NY 
757 Mark Pardy New Milton, Hamp UK From European
758 Celsey Daniels Calgary AB From Jerry
759 Tom Cripps   BMS. Wife is Teresa
760 TD    BMS From Jerry
761 Nadine Awde   Asian
762 Rosaura Santa Orlasndo FL Eur. Site
763 Jose N    
764 Teresa Tadros Tallahasse FL 
765 Daniella  Whittington  UK Had a baby.
766 mctx    Afro American
767 Bob    
768 Julie Breton Mascouche QC 
769 Stephanie  Canton NY 
770 Jacqueline    
771 Adam    
772 Dan    
773 Philip Kaplan  NY Had a BMT. 16oct03
774 Alain Branchereau  Frankfurt Germany From Asian
775 Amanda Harris  MI From Asian
776 Sam Blood   From European
777 Bernard Davidoff   From Asian
778 Eugenea Bouchia   From Asian. Genie See # 113
779 Krithika Adimoolan   Asian
780 Michael    MUD 5 yrs ago. Great shape
781 Jonathan    Mom is Fran
782 Steen Langeland  dk 
783 David Gulledge Birmingham Alabama Ann Jessup -Fiancee David has CML
784 Teoh Poh Tiong  Singapore Malysia BMT relapse, PT on chat
785 Rodney Cole Halifax NS Turtle
786 Gordon Crawford Crewe, Cxheshire UK Did a stem cell collection
787 Dr. Shital Kiran Bangalore India Wants to father a child
788 Gay Bratton   Turtle - Dec 99
789 Brenda Morelli   
790 Carol Salmon   Dad on BMS
791 Kit Yong Houston TX From Asian site
792 Andreas Shattler Toronto ON 
793 Libby Scrivner Mobile AL 
794 Christine Finsand Chatfield MN 
795 Debbie Coopwood Tuscon AZ From Druke Tribute Album
796 Ruth McIntosh   From Asian. On AMN107
797 Gwen Nowland Victoria BC Via BMT-18NOV03
798 Annie Kennedy Edinburgh UK Euro site
799 David Wolovitz Glem Mills PA 
800 Jerry Mayfield   
801 Judy J   Jerry's site
802 Ricky Zhao Shanghai CH 
803 Nick    
804 Jim Carlson   
805 Barbara Meunier   
806 Kyle Hoover   Wiffe Marge.  had BMT, relapse, Gleevec
807 Erin Zammett New York NY Editor for Glamour mag
808 Mark Sharp  WA BMT. Wife Katrina
809 Meghann Bell   
810 David    UK site. In trial with
811 Kay Tweety  MI Black lady
812 Ron Groves   From Jerry's site
813 Fjohn    
814 Tom  Green Bay WI From CML Hope
815 Pat Reynolds Lynnville TN via PCR
816 Tommy Cleaver Winchester VA Mom is Suzan Schabo
817 Craig Cooper  UK wife is Maria
818 Andrew   AU European site.
819 John Thompson Murietta CA 
820 Angela Tyrell   Eur. Site.
821 Geoff Thomas  UK BMT. Football star.
822 Siri Jinadasa Montreal QC Met at YUL meeting
823 Phil  North Somerset UK European site.
824   Thiva GR From Jerry's site. Wife is Elena
825 Peter Howlett  AU hottuna_au
826 Dieter   GermanyJrrr'ys site 
--
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'Jeanie' via CMLHope
2016-10-02 14:44:08 UTC
Permalink
Wow!!! And thanks. Anyone else?!!!

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Post by ANGELYN ESDERS
This is all I have...
ZERO CLUB MEMBERS
No. Name Surname City St Comment
1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida
2 Linda Bartlett Cody WY Gleevec
3 Jeanelle Street Nederland TX
4 Vinny Carrasco
5 Rob Gebauer Roseville CA
6 Suzan McNamara Montreal QU Petition originator.
7 Cynthia Duty Arlington VA Mother is Kim
8 Dorothy Emery Denver NC Helped with album
9 Jill Jones Husband is Richard
10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore
11 Bob Andrews Relapsed. Was in accellerated.
13 Jane Graham Seattle WA
14 Marilyn Phillips Buckhannon WV Son Tim writes.
15 Chris Posadas Laurie?
16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989
23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri
33 Angelo Arizzo Goes to MD Anderson
34 Scott Read Kaysville UT
44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly in Chapel Hill.
45 Alayna Leppke OK
47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 in jun03
49 Dave Schulz Detroit MI Had a self transplant.
50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus
52 Bob Aylesworth St. Petersberg FL Wife Dawn
54 Bob Stewart Granger IN Wife Pat
58 Judy Orem Portland OR
59 Pete Pabon Palm Harbour FL Moved from Bayside NY
60 Ken Allen
61 Riza Yilmabasar
62 Lorraine Rollo
64 Dave B. INF only
65 Jennifer Gangloff
66 Nancy Belcher Alameda CA Liver toxicity
67 Thea Rosen Dr. M. Shurafa, Henry Ford
69 Kristin Olson Lieberman San Marino CA
70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml
71 David Cranmer Shelburne VT BMT relapse, wife is Allison
72 Abe Weintraub father in law Barry
73 Fposades Fish BMT
74 Dianne Ness Mpls MN Husband Paul, INF
75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC
76 Angely Esders Brantford ON Canada...Gleevec
77 Dana Huddleston
78 Richard Schenk Harpers Ferry WV
79 David Greenberg Hobart IN
80 Sylvia Guenther Toronto ON
81 Harmony Jaursch
82 Susan Geller Chicago IL INF, daughter Jodi has CML
83 Sandra Craine London UK lives in UK
84 Victoria Bartling
85 Marajou Janse The Hague Netherlands
86 Steven Flack San Diego CA
87 Mithun Kamath New Orleans LA 15yr, dad is Burde
88 Linda Ginn age 44
89 Phylecia Wilson
90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith
91 Steve Harvey
92 Georgia Coats Dearborn MI age 28
93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian
94 Tracy van Houwling Leiden NL
95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz
96 Bruce Weinstock Richfield MN Had a BMT. Relapsed. Gleevec
97 Terry Lowell Littleton CO
98 Doug Tan Kuala Lumpur Malaysia
99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec
100 John Calderwood Vancouver BC Still waiting. 1% left.
101 Susan Carrow Buffalo NY
102 Zavie Miller Ottawa ON
103 Amy Fischer Boca Raton FL
104 Unlucky for Japanese
105 Ken Ito Japan
106 Darlene Shepherdsville KY
107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02
108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 360-785-0907
109 Steve Robinson Longview WA Wife Jenifer, met at LTN
110 Syad Ansari
111 Lisa Martinez Tampa FL
112 Gale Woliver (Bacon) Dallas TX
113 Genie Boutchia Plymouth MA Dana Farber, Dr. De'Angelo
114 Chris Duce San Diego CA His mom is Paty
115 Bonnie Liebergot Chevy Chase MD harris.liebergot.nist.gov
116 Sal
117 Anna Powers
118 Doris Kentucky KY
119 Paula Sapinski dxd 5/4/2001
120 Joe Stark Grove OK Wife Mary, going off G May 2004
121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 0% in 3 mos.
122 Beth Petrich From European Site
123 Shelley Orenstein Boca Raton FL
124 Max Hoefler Germany
125 Keith Sharrock
126 Sydna&Bob
127 Richard Wilday
128 Caroline MacDonald Husband, Steve
129 Keith Danby
130 Ruth Waldhauer La Honda CA
131 Eugene Leyvi Gene int then gleevec
132 Mark Frazer Australia see website
133 Roxianne BMT
134 Roberta Troyer Fallston MD From Jerry's list, showing resistence
135 Jirapon Chaimongkon Bankok Thailand
136 Lloyd Peterson Brother has CML Steve
137 Ron Vietti Bakersfield CA Pastor at Valley Bible Fellowship
138 Laura McCourt
139 Sandy Butler
140 Mary
141 Donna Dunn Tuscon AZ Cousin Avis Allen writes
142 Bob Farmer Bremmerton WA BMT 1993, Zero 1996, pH+ 1997, pH- 2000, see http://oc.itgo.com/
143 Judy Levine PA
144 Bill Buckberry Hendersonville TN Wife Sue. 300mg Gleevec
145 Jehuda Driori Tel Aviv ISR His son Shai writes
146 John From Jerry's site
147 Al Rhodes Wife Lynda, at VA hospital
148 Bob Whitaker South Florida FL Wife Odile
149 John Wall Fayetteville AR 1 yr on STI
150 Doug Jensen Hood River OR Patient 13, found him in CBC news doc
151 April Bowers See Miles
151 Miles Bowers Jacksonville FL Daughter April Bowers Davis
152 Jamie Malizia Ottawa ON Wife Karen Leggettdoes all the e-mailing
153 Holly Baker St. Louis MO
154 Peter Miles Southport GB From euro list. BMT
155 Sourabh Ghosh Calcutta India
156 Shannon Sydney Australia
157 Nico Oliver Capetown SA
158 Mithun Kamath New Orleans LA Dab Burde is a prof of pharmacology
159 Joyce Mondgeau Jacksonville FL
160 Fusun Ilkay London UK
161 Steve McMillan Katy TX Wife is Nancy. Peg inf, then Gleevec
162 Mike Harris Silver Spring MD Wife Kimberly Pendergast Harris, on Gleeevec for 2 years
163 Tamara Lam Hertlelia ISR Hydrea only
164 Benyamin Reinitz Jerusalem ISR BMT, relapse
165 Yehuda Drori Ramat Gan ISR Gleevec
166 Marko Cohen Natanya ISR INF 12 years, Gleevec 9 mos
167 Ruty Glik Natanya ISR INF, Gleevec
168 Uri Cohen Sheva ISR Gleevec
169 Yossi Tavor Natanya ISR INF 2 mos, Gleevec 3 mos.
170 Ronit Shnider Rishon Lezion ISR BMT, relapse, Gleevec
171 Yoram Linman ISR Gleevec
172 Kris Ward T. Louis MO INF, CHF, Gleevec
173 Niels Hansen-Trip Ottawa ON INF, Gleevec. 106 trial
174 Neslihan Tosun Turkey Nesli, study in Germany, 0 after 3 mos.
175 Eugene Leonenko Moscow Russia From Liz Rees
176 Jim Studeman Davenport Iowa Wife Debby
177 Mark Owens Shreveport LA FISH after 6 mos
178 Ed Wife has CML. From Jerry's site
179 Roger Baker Hammersmith GB From Rees
180 Ian Sharpe GB From Rees
181 Laura Geelhoed Grand Junction CO INF
182 Carol Kalat MI From Gleevec group
183 Jeff Shaffer Louisa KY INF 8 yrs, Gleevec 6 mos
184 Mae Moyer Plantation FL GIST, from Gleevec list
185 Markus Euskirchen Berlin Germany From Gleevec group.
186 Ollie Odaka After 6 mos. On Gleevec
187 Lynne Andrews
188 Cheryl Smith
189 Duree Trautwein Houston TX Husband is William, Baylor.
190 Cindy Lewis Flower Mound TX Fairfax VA originally
191 Dona Dunn Tuscon AZ Posted by Avis Ferguson
192 Dorothy Huffstetler Kings Mountain NC Dot from Gleevec group.
193 Jim Logan Fox Point WI From STI Gazette
194 Charles Pignataro Los Angeles CA
195 Jeff Wolf Haymarket VA Gleevec/inerferon combo. Dr. O'Dweyer
196 Rachel Workman Mother is Julie, BMT, DLI, then Gleevec
197 Mariela Genta Uruguay
198 MI
199 Doug Kroeger Basking Ridge NJ Wife Gail
200 Sandra Parr Austin TX From ACOR, husband David
201 Stephanie Boyd Heath OH
202 Clyde Furumoto La Palma CA Carol is wife
203 Chris Frailey Marion IL
204 Susan Hertzog Dillsberg PA
205 Margot Menefee Wichita KA Husband Fred
206 Zazzy Hanson St. Maries ID Name is Carol
207 Jeannie Matthews Medford OR Gave her a # at 99.5 %
208 Shawn Beller Sylmar CA Wife is Heather, Holy Cross Cancer Center, Mission Hills
209 Benny Rocillo San Andres Manila From Eva
210 Jim's friend
211 Helene Anderson Oslo Norway Mother is Rune
212 Bruce Crabtree Kansas City KA Wife Jeannine
213 Sandra McKerman Tuolumne CA Looking at 3 cells.
214 Juscelino Brazil From Jerry's site
215 Hennie Bosch Netherlands
216 Mike Westland Belleville WA Firefighter
217 Julie Baumann Elmira NY After 6 mos on Glevec
218 Dennis Dricken South Bend WI
219 Earl Harford Pequot Lake MN
220 Ellen Penrod Winetka IL
221 Ken Sierzan Mayville MI On interferon. Wife is Kay. Switch to Gleevec
222 Toni Leib
223 Suzanne Dreger Escanaba MI
224 Melinda Kerner Fairfield CA Died in Aug 04. Comlications from BMT
225 Betsy Pitzman Homer AK
226 Emily Guerrant Ellensburg WA Age 24
227 Susan King South Windsor CT
228 Steve Sprague Staten Island NY Umbilical Cord Blood transplant
229 Dave Lukaszewski Milwaukee WI From ACOR
230 Alice Kjorness Cheyene WY
231 Guy Sponaugle Fairfax VA
232 Dane Tessler Treasure Is FL Daily photo
233 Larry Wickware Oaklahoma City OK Wife Tiffany - Larry had a BMT
234 Kevin Kottrel Lawrenceburg IN
235 Prescilla Atlanta GA
236 Carol Kalrak Dearborn MI
237 Joe Pfannenstiel Inman KA
238 Mike Emberton Llandudno North Wales, UK From European site
239 Jim Lynch Pittsburg MO Wife is Donna
240 Daniel Golden Springfield MO Wife is Kelly, going for transplant
241 Ellen Somerville Berkeley Heights NJ Friends with Kathy
242 Eva Manila Waiting for confirmation
243 Colleen Kanieski
244 Beau Turner Bateau Bay NSW, AU
245 Betsy Fogg Boscawen NH
246 Yehuda Drori Tel Aviv ISR Son is Shai
247 Rick Pata Oshkosh WI UofW, Madison,WI
248 Tony Garrison San Antonio TX
249 Michele Johnson Orlando FL
250
251
252 Meg Scata Middleton CT
253 Rakesh Doshi Cincinnati OH
254 Alex B Chicago IL From euro site, inf first
255 Ros and Dave From European group.
256 Elizabeth Rees London GB From European group. Goldman,Hammersmith
257 Connie Holifield Laurel MI From ACOR, Dr. K. MD Anderson
258
259 Jennifer Hudspeth Noblesville IN
260 Virginia Gardner Claremont CA UCLA trial. After 3 years.
261 Sonia Arnedo Mexico City MX
262 Jim Cook Chateaugay NY Daughter is Stephanie Leffler
263 Bryce Onaran Centreville VA Aunt Leslie Tetreault
264 Dwarka Rathi
265 Dorothy Goldstein Natanya IL
266 Ron Eaton Waiting
267 Jim Downs Palm Desert CA Linda's friend
268 Kim KR
269 Jody Capik
270 Matt Ruggiero Relapsed 6/02, cord blood trans 3/03
271 Sara Piotrowski Mondovi WI Husband Norbert publishes 'Keep America Dancing
272 Don Treated at OHSU
273 Bill Teague SC Daughter Jessica
274 Carmen Florence Italy On 300 mg
275
276 Richard Jones Rochester NY Wife Deanna
277 Karen Andrews Harvard Mass 5 kids, relapsed in 04, RAD trial
278 Maggie Plano TX
279 Jane Todd Springfield VA Turtle
280 Guy Sponaugle
281 Dave Lukaszewski Elizabeth CO Sees Dr. Link in Litleton CO.
282 Bud Huth Guelph ON Lori's dad
283 Tina Sierra Prospect CT Husband Rick
284 Karen K Maybe
285 Joey Brooklyn NY From euro group
286 Jesper KjÀllquist Sweden Via BMT, from euro group
287 Mike Sample IN
288 Rev Andrew Climpson UK
289 Janet Hansen Ithaca NY Ancient Lurking Turtle
290 Barbara Heathcoat Raleigh NC Interferon
291 Eugene Leonenko Moscow RU From europen group
292 John Wheeler Nacogdoches TX Wife Nancy, 800mg, stopped due to pain
293 Susan Armour NJ
294 Keith Sharrock UK From petition messages
295 Patty Preston Derbyshire UK From petition messages
296 Aaliyah Smith UK From petition messages
297 Kristin Wolf UK From petition messages
298 Nigel Frost UK From petition messages
299 Lorrraine Rollo UK From petition messages
300 Nancy Cogan Eugene OR Reserved
301 Jeannie Douglas UK
302 Jan Geissler Bietigheim GER From Anjana
303 Stacy Coale Birmingham Alabana Age 28. Teacher
304 Carol Miller St. Cloud FL From Gleevec group
305 Nadine Vangelisti From ACOR, Dr. K. MD Anderson
306 Lisa Boyce Fairmont WV Dr. Coonley, United Hosp Clinic, Clarksburg, Wva
307 Bruce McGarth Bryn Mawr PA Age 65
308 Linda Greeneberg Palm Springs CA
309 Joe Jurkovac
310 George Nearchou Melbourne Australia
311 Dianne DeCesare Mineral Ridge OH
312 Henny Bosch Amsterdam NL Husband Annelies?
313 Paul Barsevskis Toronto ON Wife Lyn. Paul died.
314 Kathy Brown Somers CT Had Essential Thrombocytosis
315 David Smith Wife has CML. From Jerry's site
316 Suzanne Decker Gladstone MI
317
318 Ed Ranier Wife is Rosemary.
319 Laquita Neill Carrollton M Rob manages the site
320 Ellen Froyd Carpinteria CA
321 Jeanne Burns Minneapolis MN BMT, relapse
322 Yvonne Heimann NewNew Braunfels TX BMT relapse
323 Don't display See Russ
324 Ginger Jarnagin Houston TX BMT relapse
325 Dan Sponaugle Elmhurst IL Wife is Laura Walsh
326 Jeffrey Chan NJ
327 Jim Bloomquest Ellijay GA Zero on interferon
328 JR Hill Kansas City MU From Gleevec Group
329 Joe Nishide Kishiwada,Osaka JP
330 Ken Roberson Asheville NC Bad neuropathy
331 aelbaw Brother has CML Steve
332 Dennis Gasgarth Leland, Lancs UK Failed auto SCT
333 Yvonne Poulton Newhaven, Sussex UK
334 Gina Demase Chicago IL
335 Thomas Brand Minneapolis MN From ACOR group, son has CML.
336 Sarah Hulburt Dad is Bob. From ACOR
337 Alice Cramden Springfield MO Hsp70 trial
338 Geri Sehnert Rochester NY BMT, then relapse.
339 Wendell Bailey St. Augustine FL Orig from Minnesota
340 Sue Dickerson UK from eur site
341 Marcelo Filipe Simoes Cascais PO From Eur. Site.
342 Patricia de Almeida Goncalves Lisbon PO From Eur. Site.
343 Joan Hume Sydney AU
344 Maria Carpenter
345 Jody Porter Los Angeles CA
346 Rodney Shelly Shingleton MI From ACOR.
347 Douglas Yost Eden Prarie MN From Gleevec, mom is Laurel, fathered a son
348 Ed de la Cruz-Munoz Miami FL Brother is Jorge
349 Brian Land Dallas TX
350
351 Tracey In Canada Ottawa ON Good friend
352 Lynne Andrews MA Trisomy 8
353 Travis McArthur WI Father is Kent. JW
354 Anita Rowland Orangeville ON Came to my hearing
355 Mike Liston Pittsburg CA Wife is Jeanie
356 Jacki Holcomb Austin TX
357
358 Felice Bombaci Torino IT 106 on inf.
359 Jeannie Ingalls Greenville SC Husband Paul
360 Erico TW
361 Sharon Morris Running London Marathon GB Sees Hochhaus
362 Peter Lim Yeng Chuan Singapore
363 Judy Martyn Niagara Fall Ball. Ken is husband
364 Johan Drotskie Johannesburgh SA
365 Janice Amason Lineville AL
366 Dilar Vermeulen Mom is Dorita NL
367 Joan Ann Via mini BMT
368 Davina Magill From European site
369 Joseph From European site
370 Kate Debrovnik CR
371 Deana Brenner Staten Island NY Marty's friend
372 Peter Jaeggin Oakville ON T.O. Pete
373 Susan Buchman Springbrook WI From Jerry's site
374 Pramila Khanna Daughter is Vivek
375 Viviane Quadri RUDOLFSTETTEN Switzerland From European site
376 Pamela From Jerry's site
377 Shelly Pate Joplin MO From Jerry's site
378 Bob Fox From Jerry's site
379 Richard Elledge Hope AR Wife, Dani
380 John Owen Solana Beach CA From Jerry's site. On 300mg
381 Travis Northcote San Diego CA Wife is Kate Blease
382 Juan OVALLE Long Beach CA
383 Dave Milton From European site
384 Jean Yoko Craft Fruitvale BC Husband Donald
385 Walt Seldon Severna Park MD
386 Keno Elsen Frankfurt DL
387 Alfredo Campos BR
388 Ralph Robertson
389
390 Bev Belsha Milwaulie WI
391 Tamara Norton
392 Cheryl Simoneau Pointe Claire QC Born in Santa Monica
393 Rebecca Schneider
394 Steve Bowser Leicestershire GB Partner Lisa
395 Marge Valdmann ES
396 Danny Qin Manilla From Eve
397 Phil Long Plymouth Meeting PA
398 Shonoa Ruddick Santa Cruz CA
399 Judy Gingrich Lancaster PA
400 Judy Wilson Bronxville NY Husband James
401 Barbara Stanley Mesa AZ
402 Paul Somerville San Francisco CA Races motorcycles
403 Nancy Meyers Husband is Michelle. ACOR
404 Rajdeep Singh Delhi India From Anjana
405 Orit Golovity IS From Leeora
406 Marlene Ellman
407 Holly Pittsburgh
408 Erin Loeher Royal Oak MI From Gleevec group. Hodgkin's 1994
409 Debbie From Jennifer's site
410 Joyce O From Jennifer's site
411 Mariela Hillenbrand From Jennifer's site
412 Ed Draughn Morrow GA From Jennifer's site
413 Vance Werner From ACOR
414 Michel Huron
415 Judy Harvel Lancaster VA from acor
416 Kris Stebins
417 Marc Macks Baltimore MD unnamed
418 Francisco Olivera Porto PO
419 Nina Woodroff Pregnat. Mother is Denise
420 Keith Sharrock UK From Sandy
421 Richard Wilday Worcester UK From NICE
422 Jayne McCarthy Scottsdale AZ From ACOR
423 Bruce Collins Washington DC Fron ACOR
424 Suzanne Schwartz From ACOR
425 John McLeod Bellevue WA
426 Dimitri Voutselas Athens GR BMT in 1992
427 Debbie Thomas NJ Husband is Danny
428 Tami Haupt From ACOR
429 Steve Bryan From Jerry's site
430 Luis Montesino
431 Ruth Hofman Afula ISL from Giora
432 Frida Batman Afula ISL from Giora
433 V Srinivasan Chennai, Tamil Nadu India son is Venky
434 Endrias Afework El Sobrante CA From Etheopia
435
436 Tom Lehman Toronto ON Transplant at PMH
437 Benyamin Javadi Iran Father is Ahmed, Dr. is Zonovi
438 Marianne Maxey
439 Kathleen McQuillin Soquel CA 3 yrs on inf
440 Jusilo Lobao Aracaju BR
441 Freeda Barry From Gleevec List
442 Rob Harless Solona Beach CA Wife is Kelly
443 Terry Dodge West Palm Beach FL Now on BMS drug.
444 Trisha Brennecke Parsons KS 3.5 years
445 Valerie Amo Ann Arbor MI
446 Frank Vitello BMT 1/99
447 Andy Grasis Tuscon AZ Lic Plate #
448 Eran Thomson Bondi Beach, NSW AU Luke the Rat
449 Johan van der Veen Luxembourg EU
450 Tracy Keats Suffern NY Very early dx, moving to Scranton
451 Marcia Beaudry FISH relapse?
452 Fred Jung Cazenovia NY
453 Joyce Wilson Harpers Ferry WV
454 Ronald Bryan Stoney Creek VA Via BMT, wife Dottie
455 Michiel Dubois Amsterdam NL Met him in Dec03
456 Bob Samuel UK
457 Peter Quartuccio
458
459 Jan Drewett Gold Coast, Qld AU Special needs co-ordinator
460 Julia Valentine Douglas Isle of Man UK From European site
461 Jim Rodeghier New Lenox IL
462 Steve Boulton Southampton UK From European site. BMT. Wife is Sarah
463 Neil Strong UK From European sit. Wife has CML
464 Jean UK From European site. BMT. Wife is Sarah
465 Dave Feltman Dallas TX On chat
466 Erika de Haes UK
467 John From Jerry's site
468 Sara Byne From Jerry's site
469 Darin Bell Vancouver WA From WSJ
470 Andy Skidmore Enschede NL
471 Bill Wfe Marge
472 Lori Wasserman Derwood MD On INF
473 Jim From Jerry's site
474 Pat Manning Loscoe, Derbyshire GB From Eur. Site
475 Cathy Lea Toronto ON From album. BMT relapse.
476 Rakesh Gupta New Delhi India
477 Mark Stasium Portland ME Wife Sue
478 Ho-Leung Ng Oakland/Berkley CA Great researcher
479 Louis Nault Montreal QC
480 Diane Manning Looking for generic gleevec. Phillip
481 Kate Watt Montreal QC From Gleevec
482 Dave Jamrog Manchester NH From Gleevec
483 Susan Lowencamp Hartford CT On HSP70 trial
484 Cynthia Inf first. From Gleevec list
485 From Gleevec
486 Richard Soucey Waterbury CT From BMT
487 Shirley Krager
488 Mary Knotts Madison AL
489 John Doerr St. Louis MO
490 Glenn Fuller San Francisco CA trisomy 8, monosomy 7
491 Linda Baker From European site
492 Jean From Jerry's site
493 Laura Gonzalez From Jerry's site
494 Joan Clements Newport Heights CA Mary Toole's friend
495 David Roth OH Wife Ruth. 17 yrs
496 Mary McKinley Charlottesville VA From ACOR site
497 Rakesh Gupta From Gleevec
498 Scott Leslie
499 Wilma van Voorthuisen NL Met at summit
500 George Lazarowitz London ON
501 Judy Prusky Calgary AB
502 Stephanie Sylvestre Montreal QC
503 Pam May Devon UK Husband John does the email.
504 Mary Toole Mission Viejo CA
505 Miles Denham J. Aiken SC From ACOR
506 Dorothy From Gleevec
507 Steve BMT, European site. Wife is Sarah
508 Shirely Walkley Oxford UK From European site.
509 Christian Cavallero Miami FL From Miami Herald
510 Brett Ison From Miami Herald
511 John Schultz Laguna Niguel CA From ACOR
512 Jean Casey Ferndale MI Triple therapy - Gleevec
513 Terry From Europen site
514 Mary Hoglund
515 BVR Seattle WA From Gerry's site
516 HJ From Gerry's site
517 Nat
518 Maria Theresa Zenzes Mississauga ON
519 Peter Geary Aukland NZ pacific1953
520 Nancy Sutton Norway Lake ME Roland is husband
521 Grace From Europen site
522 Jacqueline Jarmusz Memphis TN Sister is Mary Ellen. Originally from Chicago
522 Mary Ellen
523 Mary Jean Hoder San Antonio TX
524 Alan Sago Father is Jim Sago
524 Jim Sago
525 Pam Truchon Germantown MD
526 Valeriano Munoz Madrid ES Spain
527 Shari Drennan ElDorado KS
528 Emile Fichault Repentigny QC
529 Bob Budynas Oahu HI
530 Richard Huffman Belton MO Dickie, vet
531 Mercedes Rodriguez Daughter is Ana
532 Hans Friessmann st.augustin Germany From Jerry's site
533 Russell Borski Broomfield CO
534 Brent Styles Blockhouse Bay NZ Dawn
535 Julie Lowsen QC
536 Bob Borland
537 Tony Davis Mom is Karyn
538 Tanya Feldman Manotick on
539 David Michaels Oakland/Berkley CA
540 Shaun Seaholm Has chromosome 9 problem
541 Ross Shirran From European site.
542 Ron Homan NC From Jerry's site. Wife is Lynn
543 Randy Provart Blaine MN
544 Theresa Migut Johnstowm PA 6 mo. On INF
545 Amy Lalonde Toronto ON
546 Syed Nasir New York NY Only 7 cells. Saba Kali
547 Pirkko KELEMAN Tampere Finland
548 Stefan DE
549 Amber Lynn Plath Menifee CA
550 Kennet DK From Jerry's list, wife is Christiana
550 Kennet Christensen Als DK From Jerry's site
551 Amy Clark Dallas TX
552 Penny Rivers Cayman Island
553 Esther Liben Montreal QC
554 Elaine Schiavo
555 Kat Miles Perth WA
556 Dawn Penny From ACOR
557 Julie Kennedy Hull QC
558 Brian Walsh Cork IRL
559 Stavros Beriatos Athens GR
560 Mark Alleman Monroe LA Relapse after 3 yrs
561 Leroy Clayton Brick NJ from Gleevec site
562 Matt Worcester Chicago IL Wife is Elizabeth
563 David Bradley Interlochen MI
564 Aaron Bullingham UK Mother is Jayne, BMT
565 Stuart Lefebvre Allen & Gail are parents
566 Andi
567 Tammy Hunt Winter Park FL hoakierollerr
568 Vinnie Falgione Pittsburgh PA
569 Janet
570 Norm 600mg
571 Anna Grimm Midland TX
572 Kathy Finnigan Cataumet MA
573 Melinda Folse Slidel Louisianna From Jerry's site, mutations
574 Helen From Jerry's site
575 Alison European site
576 Richard Schempp Neilberg SK
577 Chris Stickle Branchburg NJ
578 Sharron Wallace From Gerry's site
579 Carolyn Oehrle Louisville KY From Jerry's site
580 Lynne Frankli PA Zero after 11 weeks. Liver toxicity
581 Micheline Campeau From Cheryl
582 jhill
583 Brian Manning From European site, wife Pat posts.
584 Susan Rosenthal Miami FL
585 Jim From Gleevec list
586 Sharon Hudson MA
587 Lisa Perry
588 Larry Hicks
589 Rodney
590 Cindy LOUEY Melbourne AU
591 Sandy Butler From Jerry's site
592 Stan Ste Croix Barrie ON From Jerry's site
593 John Bonistalli Elliot City MD Wife is Dane, pregenant
594 Barbara Masters Grants Pass OR
595 Chandra Singh Mumbai India From Ferry's site
596 Ed From Jerry's site
597 Simone The Pas Manitoba (Sunny)Priscilla is mom.
598 Carl Davies PA
599 Janet Greenberg Toronto ON Met her at Winter 2004
600 Jack Hooper Canto GA Jenny's dad
601 Valorie Reid Kalamazoo MI Fronm Jerry's site
602 Glenda Smith Joplin MO Fronm Jerry's site
603 Fides Putong From Asian List via Eva
604 Valentina Gomez From Asian List via Eva
605 Phyl D Cantom MI
606 Julianne Harju MI
607 Patricia de Almeida Dever from European site
608 Marion Staplefeld Ryegate VT Moe
609 Annette Babb
610 Krithika Adimoolam Chennai India From Asian site
611 From Asian site. On inf. 12 yrs
612 Edna Boyd
613 Don Adkins Colorado Springs CO
614 Paul coonass2112
615 Elizabeth Duley Kents Store VA CCR on INF, relapsed, then Gleevec
616 Chris Woodroff Problem with email address European site
617 Ethan Christina reports. European site
618 Esther Harper European site
619 Donna Swart Auburn WA
620 Doc wants her to go off Gleevec
621 Nancy Craig Gorham ME BMT. From Jerry's site
622 Mike Cleaves Port Republic MD Wife has CML. Was on GM-CSF and INF trials.
623 Stacey Atkinson From European site
624 Sandy Weber Cincinnati OH From Asian site
625 Jill Jones Stourbridge, Midlands UK From European site
626 Matthew Loos Iowa City OW
627 Robert Jackson San Francisco CA Wife is Sharon Parker. From Jerry's site
628 Dana Burba 800 trial at MDA
629 Nadine Lim From Eva, Phillipines
630 Alen Glen Sayson From Eva, Phillipines
631 Alona Garrido From Eva, Phillipines
632 Steven Persaud NYC? NY Mother is Angelo
633 Charles Gilbert Susan Zencka's dad. Turtle
634 Juergen Karl Frankfurt DE
635 Christine Barthelemy FR Has liver toxicity
636 Jimmie Phillips Hattiesburg MS
637 Carlos Valentia Tuscon AX Cord blood, IM. From Tuscon newpaper
638 Paul Patterson Bartlesville OK Dr. wants to stop Gleevec
639 Bob Glover Hornsby AU From Asian group
640 Wayne Cox
641 Don
642 Gloria Dunford Westland MI
643 Desnee Lynne McClarnan Swansea, Wales UK From European site
644 Ruth Collins
645 Andreas Wertberg DE from Asian site
646 Amy AU From Perth, now in Georgia
647 Andrew Sklarz Yardley PA From Cheryl
648 Yvette Hyland Weston-super-Mare, Somerset UK From European. Jason's wife
649 Kathy Soloff Penn Valley PA From Asian site
650 Steen Lyngvig From European site
651 Jessie Altura Calgary AB BMT from sister.
652 Josh From Jerry's site
653 Rosanna Bernstein Miami FL Qult for Druker
654
655 Chris Lambert From Eur. Wife is Sarah
656 Mike Bernardino From Jerry's site, keep confid
657 Jeff Vierstra From Jerry's site. BMT
658 Lauren AU From Jerry's site. BMT
659 Stephan UK From Eur. BMT. Parents Neil&Sam
660 Genevieve Russo Her daughter has CML
661 Amanda Olivere Newark DE Jerry's site
662 Joan Porter Jacksonville FL
663 Both are 82. Wife has CML. 200mg
664 Maximo Olivo Venice IT From Jerry's site
665 Nasir Chestnut Ridge NY From Asian Group
666 Rory Collins
667 Lynne Nadal Vancouver WA From Jerry's site. 132 in Appreciation album
668 Elmer HU
669 Marie Chapman Frum Eur site. BMT
670 His father has CML. In appreciation album
671 Massoud
672 Cindy Paul #638 friend. Had a BMT
673 Tom From euro site. Wife Karen
674 Rosey Brenan Vancouver BC Sister is Elizabeth
675 Susie Leech Port Lincoln AU
676 Kathleen Verderber Southgate KY 6 mos in Naples, FL
677 Laura H Paducah KY From Jerry's site
678 Mark From European
679 Jerry From Jennifer's site
680 Ray Haines From Jennifer's site
681 Kennet Geihsler Houston TX Called his son
682 Monique Kuijpers NL Met at Milan meeting
683 David Pillow UK
684 Judy From European site. See Patty Preston
685 Richard Jones UK Brother has CML
685 Simon Jones UK
687
688 Ed From Jerry's site
689 Sara Byne Charlottesville NC From Jerry's site
690 Charley Morgan Ogden UT
691 Janice Jackson UK "European site. Had a mini BMT. http://homepage.ntlworld.com/dave.jackson4/homepage.htm
"
692 Lynne
693 Darlene Lawless UK From Europ site
694 Barry Stark barryhuthut from chat
695 Amanda Lane From Europ site. Wants a baby
696 Denis Hung From Asian site
697 Pamela Levine NY From Jerry's site
698 Philip Kruger Montville NJ From Jerry's site. Thank you
699 Judy Telford Melbourne AU BMT relapse after 11 years.
700 Bob Wilhelm Wife Nancy. BMS trial. Desert Tortoise.
701 Sheila Durbin Utica KY Husband is David
702 Jim Johnson
703 Dee
704 Larry Moe Newbury Park CA Relapsed on 300 mg
705 Steve Silver Montreal QC Inf 9 yrs.
706 Don Tracy Sherman PA Nam Vet
707 Christine Finsand ACOR
708 Valerie Scott ACOR. In album.
709 Karen Sos
710 Peter Stick From Jerry. BMS trial
711 Suzanne Festa CN From Asian
712 Chloe 3 yrs old
713 Morgan Blackford 6 yrs old, Michelle is mom
714 Eleanore Perkins
715 Debra Moretz
716 Jason Nagy
717 Suzanne Festa
718 Ron Lacy
719 Masoud Seyedjalali From Asian site
720 Vickie From Jerry's site
721 Geeta
722 Mary Hooker Bebton LA From PLWC ASCO site
723 Victoria From Jerry's site
724 Eoghan Gallagher Strokestown IR From European site
725 Sultan FR From Jerry's site
726 Derek Bergmann UK From European site.
727 Richard Troxel Newhall CA
728 Sergio Garcia Orange County CA
729 Susan Dale FR From BMT in France
730 Jim Simpson Winnipeg MA From European site
731 Denis Culligan Dublin IR From European site
732 Tonya Atlanta GA
733 Miles Levim BMT
734 Dee (Doreen) Hedman Duluth MI
735 Marilynn
736 Sam European site.
737 Barbara Marfleet European site.
738 Marlene Curby Low ANC. On Asian list
739 Marcia ON Marcia is wife. From Jerry'e site.
740 Joyce Davis European site.
741 David Landry Debbis is his mom
742 Stuart is husband. Eur. Site
743 Ian Prudence UK Kathy is wife. From Europ site
744 Melinda Pierce
745 Dawn Cigainero Hooks TX Husband is Chris. From ACOR
746 Nathalie Doyle Contz les Bains FR Had a baby
747 Betsy Carlin Holmdel NJ Husband is James
748 Mike Siegel Cyclist. Newspaer Article
749 m&m
750 Eva Brubaker Upland CA On BMS drug
751 Michael Herring Atlanta GA Retired military. Back to school. Eur. Site.
752 Linda Scukins European site
753 Paul Codrington Minster, Isle of Sheppey UK
754 Carolyn Bullard BMT
755 Tommy Tbone From Jerry's site. BMT relapse
756 Nancy Chando Hurley NY
757 Mark Pardy New Milton, Hamp UK From European
758 Celsey Daniels Calgary AB From Jerry
759 Tom Cripps BMS. Wife is Teresa
760 TD BMS From Jerry
761 Nadine Awde Asian
762 Rosaura Santa Orlasndo FL Eur. Site
763 Jose N
764 Teresa Tadros Tallahasse FL
765 Daniella Whittington UK Had a baby.
766 mctx Afro American
767 Bob
768 Julie Breton Mascouche QC
769 Stephanie Canton NY
770 Jacqueline
771 Adam
772 Dan
773 Philip Kaplan NY Had a BMT. 16oct03
774 Alain Branchereau Frankfurt Germany From Asian
775 Amanda Harris MI From Asian
776 Sam Blood From European
777 Bernard Davidoff From Asian
778 Eugenea Bouchia From Asian. Genie See # 113
779 Krithika Adimoolan Asian
780 Michael MUD 5 yrs ago. Great shape
781 Jonathan Mom is Fran
782 Steen Langeland dk
783 David Gulledge Birmingham Alabama Ann Jessup -Fiancee David has CML
784 Teoh Poh Tiong Singapore Malysia BMT relapse, PT on chat
785 Rodney Cole Halifax NS Turtle
786 Gordon Crawford Crewe, Cxheshire UK Did a stem cell collection
787 Dr. Shital Kiran Bangalore India Wants to father a child
788 Gay Bratton Turtle - Dec 99
789 Brenda Morelli
790 Carol Salmon Dad on BMS
791 Kit Yong Houston TX From Asian site
792 Andreas Shattler Toronto ON
793 Libby Scrivner Mobile AL
794 Christine Finsand Chatfield MN
795 Debbie Coopwood Tuscon AZ From Druke Tribute Album
796 Ruth McIntosh From Asian. On AMN107
797 Gwen Nowland Victoria BC Via BMT-18NOV03
798 Annie Kennedy Edinburgh UK Euro site
799 David Wolovitz Glem Mills PA
800 Jerry Mayfield
801 Judy J Jerry's site
802 Ricky Zhao Shanghai CH
803 Nick
804 Jim Carlson
805 Barbara Meunier
806 Kyle Hoover Wiffe Marge. had BMT, relapse, Gleevec
807 Erin Zammett New York NY Editor for Glamour mag
808 Mark Sharp WA BMT. Wife Katrina
809 Meghann Bell
810 David UK site. In trial with
811 Kay Tweety MI Black lady
812 Ron Groves From Jerry's site
813 Fjohn
814 Tom Green Bay WI From CML Hope
815 Pat Reynolds Lynnville TN via PCR
816 Tommy Cleaver Winchester VA Mom is Suzan Schabo
817 Craig Cooper UK wife is Maria
818 Andrew AU European site.
819 John Thompson Murietta CA
820 Angela Tyrell Eur. Site.
821 Geoff Thomas UK BMT. Football star.
822 Siri Jinadasa Montreal QC Met at YUL meeting
823 Phil North Somerset UK European site.
824 Thiva GR From Jerry's site. Wife is Elena
825 Peter Howlett AU hottuna_au
826 Dieter GermanyJrrr'ys site
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Ana Burgos
2016-10-17 11:13:43 UTC
Permalink
Someone there?




De: 'Jeanie' via CMLHope<mailto:***@googlegroups.com>
Enviado: domingo, 2 de octubre de 2016 16:44
Para: ***@googlegroups.com<mailto:***@googlegroups.com>
Asunto: Re: [CMLHope] Zavie's List

Wow!!! And thanks. Anyone else?!!!

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center

On Sep 30, 2016, at 11:06 PM, ANGELYN ESDERS <***@rogers.com<mailto:***@rogers.com>> wrote:
This is all I have...

ZERO CLUB MEMBERS
No. Name Surname City St Comment
1 Marty Gartenberg Staten Island NY BMT from sister. I now live in Florida
2 Linda Bartlett Cody WY Gleevec
3 Jeanelle Street Nederland TX
4 Vinny Carrasco
5 Rob Gebauer Roseville CA
6 Suzan McNamara Montreal QU Petition originator.
7 Cynthia Duty Arlington VA Mother is Kim
8 Dorothy Emery Denver NC Helped with album
9 Jill Jones Husband is Richard
10 Ellen Rubino New York NY Mother has CML Email doesn't work anymore
11 Bob Andrews Relapsed. Was in accellerated.
12 Margie Bovee Saline MI Sees Dr. Schiffer @ Karmanis in Detroit
13 Jane Graham Seattle WA
14 Marilyn Phillips Buckhannon WV Son Tim writes.
15 Chris Posadas Laurie?
16 Wayne Becken Niagra Falls ON Trial in Detroit. Diag. Mar 1989
23 Fran Evertsbusch Anchorage Alaska INF, now on Gleevec, name is Maiuri
33 Angelo Arizzo Goes to MD Anderson
34 Scott Read Kaysville UT
44 Cliff Layman Raleigh (from Schenectady NY) NC see Dr. Shea and Dr.Powderly in Chapel Hill.
45 Alayna Leppke OK
47 Joyce Ward Pickerington OH Early chronic, 0 at 3 mos. Heart attach, 1/20 in jun03
49 Dave Schulz Detroit MI Had a self transplant.
50 Giora Scharf Natanya ISR 0 by Dr. Hochhaus
52 Bob Aylesworth St. Petersberg FL Wife Dawn
54 Bob Stewart Granger IN Wife Pat
58 Judy Orem Portland OR
59 Pete Pabon Palm Harbour FL Moved from Bayside NY
60 Ken Allen
61 Riza Yilmabasar
62 Lorraine Rollo
64 Dave B. INF only
65 Jennifer Gangloff
66 Nancy Belcher Alameda CA Liver toxicity
67 Thea Rosen Dr. M. Shurafa, Henry Ford
69 Kristin Olson Lieberman San Marino CA
70 Diane Wiley Coronado CA mom hDaughter is Laura Civilikasas cml
71 David Cranmer Shelburne VT BMT relapse, wife is Allison
72 Abe Weintraub father in law Barry
73 Fposades Fish BMT
74 Dianne Ness Mpls MN Husband Paul, INF
75 Richard Rockefeller Falmouth ME Dr., was on peg inf, MSKCC
76 Angely Esders Brantford ON Canada...Gleevec
77 Dana Huddleston
78 Richard Schenk Harpers Ferry WV
79 David Greenberg Hobart IN
80 Sylvia Guenther Toronto ON
81 Harmony Jaursch
82 Susan Geller Chicago IL INF, daughter Jodi has CML
83 Sandra Craine London UK lives in UK
84 Victoria Bartling
85 Marajou Janse The Hague Netherlands
86 Steven Flack San Diego CA
87 Mithun Kamath New Orleans LA 15yr, dad is Burde
88 Linda Ginn age 44
89 Phylecia Wilson
90 Peter Capel Walton on Themes Surry From Elizabeth Rees - Hammersmith
91 Steve Harvey
92 Georgia Coats Dearborn MI age 28
93 Ruth Marcon Allentown PA Dr. Shuster, NY Presbyterian
94 Tracy van Houwling Leiden NL
95 Jack Plummer Aventura FL From ACOR, Dr. Talpaz
96 Bruce Weinstock Richfield MN Had a BMT. Relapsed. Gleevec
97 Terry Lowell Littleton CO
98 Doug Tan Kuala Lumpur Malaysia
99 John Rowe Oxon Hill MD Wife Marguaritte, after 12 mos on Gleevec
100 John Calderwood Vancouver BC Still waiting. 1% left.
101 Susan Carrow Buffalo NY
102 Zavie Miller Ottawa ON
103 Amy Fischer Boca Raton FL
104 Unlucky for Japanese
105 Ken Ito Japan
106 Darlene Shepherdsville KY
107 Charlie Jensen Fort Colins CO Wife is Vicky. Relapsed Mar02
108 Ladonna Lopossa Winlock WA 207 E Walnut #22 Winlock WA 98596 FISH 0 360-785-0907
109 Steve Robinson Longview WA Wife Jenifer, met at LTN
110 Syad Ansari
111 Lisa Martinez Tampa FL
112 Gale Woliver (Bacon) Dallas TX
113 Genie Boutchia Plymouth MA Dana Farber, Dr. De'Angelo
114 Chris Duce San Diego CA His mom is Paty
115 Bonnie Liebergot Chevy Chase MD harris.liebergot.nist.gov<http://harris.liebergot.nist.gov/>
116 Sal
117 Anna Powers
118 Doris Kentucky KY
119 Paula Sapinski dxd 5/4/2001
120 Joe Stark Grove OK Wife Mary, going off G May 2004
121 = Mulone Astoria NY Frances dx 5/22/2, Gleevec 5/25/01-10/2/01 bma-cyto 0% in 3 mos.
122 Beth Petrich From European Site
123 Shelley Orenstein Boca Raton FL
124 Max Hoefler Germany
125 Keith Sharrock
126 Sydna&Bob
127 Richard Wilday
128 Caroline MacDonald Husband, Steve
129 Keith Danby
130 Ruth Waldhauer La Honda CA
131 Eugene Leyvi Gene int then gleevec
132 Mark Frazer Australia see website
133 Roxianne BMT
134 Roberta Troyer Fallston MD From Jerry's list, showing resistence
135 Jirapon Chaimongkon Bankok Thailand
136 Lloyd Peterson Brother has CML Steve
137 Ron Vietti Bakersfield CA Pastor at Valley Bible Fellowship
138 Laura McCourt
139 Sandy Butler
140 Mary
141 Donna Dunn Tuscon AZ Cousin Avis Allen writes
142 Bob Farmer Bremmerton WA BMT 1993, Zero 1996, pH+ 1997, pH- 2000, see http://oc.itgo.com/
143 Judy Levine PA
144 Bill Buckberry Hendersonville TN Wife Sue. 300mg Gleevec
145 Jehuda Driori Tel Aviv ISR His son Shai writes
146 John From Jerry's site
147 Al Rhodes Wife Lynda, at VA hospital
148 Bob Whitaker South Florida FL Wife Odile
149 John Wall Fayetteville AR 1 yr on STI
150 Doug Jensen Hood River OR Patient 13, found him in CBC news doc
151 April Bowers See Miles
151 Miles Bowers Jacksonville FL Daughter April Bowers Davis
152 Jamie Malizia Ottawa ON Wife Karen Leggettdoes all the e-mailing
153 Holly Baker St. Louis MO
154 Peter Miles Southport GB From euro list. BMT
155 Sourabh Ghosh Calcutta India
156 Shannon Sydney Australia
157 Nico Oliver Capetown SA
158 Mithun Kamath New Orleans LA Dab Burde is a prof of pharmacology
159 Joyce Mondgeau Jacksonville FL
160 Fusun Ilkay London UK
161 Steve McMillan Katy TX Wife is Nancy. Peg inf, then Gleevec
162 Mike Harris Silver Spring MD Wife Kimberly Pendergast Harris, on Gleeevec for 2 years
163 Tamara Lam Hertlelia ISR Hydrea only
164 Benyamin Reinitz Jerusalem ISR BMT, relapse
165 Yehuda Drori Ramat Gan ISR Gleevec
166 Marko Cohen Natanya ISR INF 12 years, Gleevec 9 mos
167 Ruty Glik Natanya ISR INF, Gleevec
168 Uri Cohen Sheva ISR Gleevec
169 Yossi Tavor Natanya ISR INF 2 mos, Gleevec 3 mos.
170 Ronit Shnider Rishon Lezion ISR BMT, relapse, Gleevec
171 Yoram Linman ISR Gleevec
172 Kris Ward T. Louis MO INF, CHF, Gleevec
173 Niels Hansen-Trip Ottawa ON INF, Gleevec. 106 trial
174 Neslihan Tosun Turkey Nesli, study in Germany, 0 after 3 mos.
175 Eugene Leonenko Moscow Russia From Liz Rees
176 Jim Studeman Davenport Iowa Wife Debby
177 Mark Owens Shreveport LA FISH after 6 mos
178 Ed Wife has CML. From Jerry's site
179 Roger Baker Hammersmith GB From Rees
180 Ian Sharpe GB From Rees
181 Laura Geelhoed Grand Junction CO INF
182 Carol Kalat MI From Gleevec group
183 Jeff Shaffer Louisa KY INF 8 yrs, Gleevec 6 mos
184 Mae Moyer Plantation FL GIST, from Gleevec list
185 Markus Euskirchen Berlin Germany From Gleevec group.
186 Ollie Odaka After 6 mos. On Gleevec
187 Lynne Andrews
188 Cheryl Smith
189 Duree Trautwein Houston TX Husband is William, Baylor.
190 Cindy Lewis Flower Mound TX Fairfax VA originally
191 Dona Dunn Tuscon AZ Posted by Avis Ferguson
192 Dorothy Huffstetler Kings Mountain NC Dot from Gleevec group.
193 Jim Logan Fox Point WI From STI Gazette
194 Charles Pignataro Los Angeles CA
195 Jeff Wolf Haymarket VA Gleevec/inerferon combo. Dr. O'Dweyer
196 Rachel Workman Mother is Julie, BMT, DLI, then Gleevec
197 Mariela Genta Uruguay
198 MI
199 Doug Kroeger Basking Ridge NJ Wife Gail
200 Sandra Parr Austin TX From ACOR, husband David
201 Stephanie Boyd Heath OH
202 Clyde Furumoto La Palma CA Carol is wife
203 Chris Frailey Marion IL
204 Susan Hertzog Dillsberg PA
205 Margot Menefee Wichita KA Husband Fred
206 Zazzy Hanson St. Maries ID Name is Carol
207 Jeannie Matthews Medford OR Gave her a # at 99.5 %
208 Shawn Beller Sylmar CA Wife is Heather, Holy Cross Cancer Center, Mission Hills
209 Benny Rocillo San Andres Manila From Eva
210 Jim's friend
211 Helene Anderson Oslo Norway Mother is Rune
212 Bruce Crabtree Kansas City KA Wife Jeannine
213 Sandra McKerman Tuolumne CA Looking at 3 cells.
214 Juscelino Brazil From Jerry's site
215 Hennie Bosch Netherlands
216 Mike Westland Belleville WA Firefighter
217 Julie Baumann Elmira NY After 6 mos on Glevec
218 Dennis Dricken South Bend WI
219 Earl Harford Pequot Lake MN
220 Ellen Penrod Winetka IL
221 Ken Sierzan Mayville MI On interferon. Wife is Kay. Switch to Gleevec
222 Toni Leib
223 Suzanne Dreger Escanaba MI
224 Melinda Kerner Fairfield CA Died in Aug 04. Comlications from BMT
225 Betsy Pitzman Homer AK
226 Emily Guerrant Ellensburg WA Age 24
227 Susan King South Windsor CT
228 Steve Sprague Staten Island NY Umbilical Cord Blood transplant
229 Dave Lukaszewski Milwaukee WI From ACOR
230 Alice Kjorness Cheyene WY
231 Guy Sponaugle Fairfax VA
232 Dane Tessler Treasure Is FL Daily photo
233 Larry Wickware Oaklahoma City OK Wife Tiffany - Larry had a BMT
234 Kevin Kottrel Lawrenceburg IN
235 Prescilla Atlanta GA
236 Carol Kalrak Dearborn MI
237 Joe Pfannenstiel Inman KA
238 Mike Emberton Llandudno North Wales, UK From European site
239 Jim Lynch Pittsburg MO Wife is Donna
240 Daniel Golden Springfield MO Wife is Kelly, going for transplant
241 Ellen Somerville Berkeley Heights NJ Friends with Kathy
242 Eva Manila Waiting for confirmation
243 Colleen Kanieski
244 Beau Turner Bateau Bay NSW, AU
245 Betsy Fogg Boscawen NH
246 Yehuda Drori Tel Aviv ISR Son is Shai
247 Rick Pata Oshkosh WI UofW, Madison,WI
248 Tony Garrison San Antonio TX
249 Michele Johnson Orlando FL
250
251
252 Meg Scata Middleton CT
253 Rakesh Doshi Cincinnati OH
254 Alex B Chicago IL From euro site, inf first
255 Ros and Dave From European group.
256 Elizabeth Rees London GB From European group. Goldman,Hammersmith
257 Connie Holifield Laurel MI From ACOR, Dr. K. MD Anderson
258
259 Jennifer Hudspeth Noblesville IN
260 Virginia Gardner Claremont CA UCLA trial. After 3 years.
261 Sonia Arnedo Mexico City MX
262 Jim Cook Chateaugay NY Daughter is Stephanie Leffler
263 Bryce Onaran Centreville VA Aunt Leslie Tetreault
264 Dwarka Rathi
265 Dorothy Goldstein Natanya IL
266 Ron Eaton Waiting
267 Jim Downs Palm Desert CA Linda's friend
268 Kim KR
269 Jody Capik
270 Matt Ruggiero Relapsed 6/02, cord blood trans 3/03
271 Sara Piotrowski Mondovi WI Husband Norbert publishes 'Keep America Dancing
272 Don Treated at OHSU
273 Bill Teague SC Daughter Jessica
274 Carmen Florence Italy On 300 mg
275
276 Richard Jones Rochester NY Wife Deanna
277 Karen Andrews Harvard Mass 5 kids, relapsed in 04, RAD trial
278 Maggie Plano TX
279 Jane Todd Springfield VA Turtle
280 Guy Sponaugle
281 Dave Lukaszewski Elizabeth CO Sees Dr. Link in Litleton CO.
282 Bud Huth Guelph ON Lori's dad
283 Tina Sierra Prospect CT Husband Rick
284 Karen K Maybe
285 Joey Brooklyn NY From euro group
286 Jesper KjÀllquist Sweden Via BMT, from euro group
287 Mike Sample IN
288 Rev Andrew Climpson UK
289 Janet Hansen Ithaca NY Ancient Lurking Turtle
290 Barbara Heathcoat Raleigh NC Interferon
291 Eugene Leonenko Moscow RU From europen group
292 John Wheeler Nacogdoches TX Wife Nancy, 800mg, stopped due to pain
293 Susan Armour NJ
294 Keith Sharrock UK From petition messages
295 Patty Preston Derbyshire UK From petition messages
296 Aaliyah Smith UK From petition messages
297 Kristin Wolf UK From petition messages
298 Nigel Frost UK From petition messages
299 Lorrraine Rollo UK From petition messages
300 Nancy Cogan Eugene OR Reserved
301 Jeannie Douglas UK
302 Jan Geissler Bietigheim GER From Anjana
303 Stacy Coale Birmingham Alabana Age 28. Teacher
304 Carol Miller St. Cloud FL From Gleevec group
305 Nadine Vangelisti From ACOR, Dr. K. MD Anderson
306 Lisa Boyce Fairmont WV Dr. Coonley, United Hosp Clinic, Clarksburg, Wva
307 Bruce McGarth Bryn Mawr PA Age 65
308 Linda Greeneberg Palm Springs CA
309 Joe Jurkovac
310 George Nearchou Melbourne Australia
311 Dianne DeCesare Mineral Ridge OH
312 Henny Bosch Amsterdam NL Husband Annelies?
313 Paul Barsevskis Toronto ON Wife Lyn. Paul died.
314 Kathy Brown Somers CT Had Essential Thrombocytosis
315 David Smith Wife has CML. From Jerry's site
316 Suzanne Decker Gladstone MI
317
318 Ed Ranier Wife is Rosemary.
319 Laquita Neill Carrollton M Rob manages the site
320 Ellen Froyd Carpinteria CA
321 Jeanne Burns Minneapolis MN BMT, relapse
322 Yvonne Heimann NewNew Braunfels TX BMT relapse
323 Don't display See Russ
324 Ginger Jarnagin Houston TX BMT relapse
325 Dan Sponaugle Elmhurst IL Wife is Laura Walsh
326 Jeffrey Chan NJ
327 Jim Bloomquest Ellijay GA Zero on interferon
328 JR Hill Kansas City MU From Gleevec Group
329 Joe Nishide Kishiwada,Osaka JP
330 Ken Roberson Asheville NC Bad neuropathy
331 aelbaw Brother has CML Steve
332 Dennis Gasgarth Leland, Lancs UK Failed auto SCT
333 Yvonne Poulton Newhaven, Sussex UK
334 Gina Demase Chicago IL
335 Thomas Brand Minneapolis MN From ACOR group, son has CML.
336 Sarah Hulburt Dad is Bob. From ACOR
337 Alice Cramden Springfield MO Hsp70 trial
338 Geri Sehnert Rochester NY BMT, then relapse.
339 Wendell Bailey St. Augustine FL Orig from Minnesota
340 Sue Dickerson UK from eur site
341 Marcelo Filipe Simoes Cascais PO From Eur. Site.
342 Patricia de Almeida Goncalves Lisbon PO From Eur. Site.
343 Joan Hume Sydney AU
344 Maria Carpenter
345 Jody Porter Los Angeles CA
346 Rodney Shelly Shingleton MI From ACOR.
347 Douglas Yost Eden Prarie MN From Gleevec, mom is Laurel, fathered a son
348 Ed de la Cruz-Munoz Miami FL Brother is Jorge
349 Brian Land Dallas TX
350
351 Tracey In Canada Ottawa ON Good friend
352 Lynne Andrews MA Trisomy 8
353 Travis McArthur WI Father is Kent. JW
354 Anita Rowland Orangeville ON Came to my hearing
355 Mike Liston Pittsburg CA Wife is Jeanie
356 Jacki Holcomb Austin TX
357
358 Felice Bombaci Torino IT 106 on inf.
359 Jeannie Ingalls Greenville SC Husband Paul
360 Erico TW
361 Sharon Morris Running London Marathon GB Sees Hochhaus
362 Peter Lim Yeng Chuan Singapore
363 Judy Martyn Niagara Fall Ball. Ken is husband
364 Johan Drotskie Johannesburgh SA
365 Janice Amason Lineville AL
366 Dilar Vermeulen Mom is Dorita NL
367 Joan Ann Via mini BMT
368 Davina Magill From European site
369 Joseph From European site
370 Kate Debrovnik CR
371 Deana Brenner Staten Island NY Marty's friend
372 Peter Jaeggin Oakville ON T.O. Pete
373 Susan Buchman Springbrook WI From Jerry's site
374 Pramila Khanna Daughter is Vivek
375 Viviane Quadri RUDOLFSTETTEN Switzerland From European site
376 Pamela From Jerry's site
377 Shelly Pate Joplin MO From Jerry's site
378 Bob Fox From Jerry's site
379 Richard Elledge Hope AR Wife, Dani
380 John Owen Solana Beach CA From Jerry's site. On 300mg
381 Travis Northcote San Diego CA Wife is Kate Blease
382 Juan OVALLE Long Beach CA
383 Dave Milton From European site
384 Jean Yoko Craft Fruitvale BC Husband Donald
385 Walt Seldon Severna Park MD
386 Keno Elsen Frankfurt DL
387 Alfredo Campos BR
388 Ralph Robertson
389
390 Bev Belsha Milwaulie WI
391 Tamara Norton
392 Cheryl Simoneau Pointe Claire QC Born in Santa Monica
393 Rebecca Schneider
394 Steve Bowser Leicestershire GB Partner Lisa
395 Marge Valdmann ES
396 Danny Qin Manilla From Eve
397 Phil Long Plymouth Meeting PA
398 Shonoa Ruddick Santa Cruz CA
399 Judy Gingrich Lancaster PA
400 Judy Wilson Bronxville NY Husband James
401 Barbara Stanley Mesa AZ
402 Paul Somerville San Francisco CA Races motorcycles
403 Nancy Meyers Husband is Michelle. ACOR
404 Rajdeep Singh Delhi India From Anjana
405 Orit Golovity IS From Leeora
406 Marlene Ellman
407 Holly Pittsburgh
408 Erin Loeher Royal Oak MI From Gleevec group. Hodgkin's 1994
409 Debbie From Jennifer's site
410 Joyce O From Jennifer's site
411 Mariela Hillenbrand From Jennifer's site
412 Ed Draughn Morrow GA From Jennifer's site
413 Vance Werner From ACOR
414 Michel Huron
415 Judy Harvel Lancaster VA from acor
416 Kris Stebins
417 Marc Macks Baltimore MD unnamed
418 Francisco Olivera Porto PO
419 Nina Woodroff Pregnat. Mother is Denise
420 Keith Sharrock UK From Sandy
421 Richard Wilday Worcester UK From NICE
422 Jayne McCarthy Scottsdale AZ From ACOR
423 Bruce Collins Washington DC Fron ACOR
424 Suzanne Schwartz From ACOR
425 John McLeod Bellevue WA
426 Dimitri Voutselas Athens GR BMT in 1992
427 Debbie Thomas NJ Husband is Danny
428 Tami Haupt From ACOR
429 Steve Bryan From Jerry's site
430 Luis Montesino
431 Ruth Hofman Afula ISL from Giora
432 Frida Batman Afula ISL from Giora
433 V Srinivasan Chennai, Tamil Nadu India son is Venky
434 Endrias Afework El Sobrante CA From Etheopia
435
436 Tom Lehman Toronto ON Transplant at PMH
437 Benyamin Javadi Iran Father is Ahmed, Dr. is Zonovi
438 Marianne Maxey
439 Kathleen McQuillin Soquel CA 3 yrs on inf
440 Jusilo Lobao Aracaju BR
441 Freeda Barry From Gleevec List
442 Rob Harless Solona Beach CA Wife is Kelly
443 Terry Dodge West Palm Beach FL Now on BMS drug.
444 Trisha Brennecke Parsons KS 3.5 years
445 Valerie Amo Ann Arbor MI
446 Frank Vitello BMT 1/99
447 Andy Grasis Tuscon AZ Lic Plate #
448 Eran Thomson Bondi Beach, NSW AU Luke the Rat
449 Johan van der Veen Luxembourg EU
450 Tracy Keats Suffern NY Very early dx, moving to Scranton
451 Marcia Beaudry FISH relapse?
452 Fred Jung Cazenovia NY
453 Joyce Wilson Harpers Ferry WV
454 Ronald Bryan Stoney Creek VA Via BMT, wife Dottie
455 Michiel Dubois Amsterdam NL Met him in Dec03
456 Bob Samuel UK
457 Peter Quartuccio
458
459 Jan Drewett Gold Coast, Qld AU Special needs co-ordinator
460 Julia Valentine Douglas Isle of Man UK From European site
461 Jim Rodeghier New Lenox IL
462 Steve Boulton Southampton UK From European site. BMT. Wife is Sarah
463 Neil Strong UK From European sit. Wife has CML
464 Jean UK From European site. BMT. Wife is Sarah
465 Dave Feltman Dallas TX On chat
466 Erika de Haes UK
467 John From Jerry's site
468 Sara Byne From Jerry's site
469 Darin Bell Vancouver WA From WSJ
470 Andy Skidmore Enschede NL
471 Bill Wfe Marge
472 Lori Wasserman Derwood MD On INF
473 Jim From Jerry's site
474 Pat Manning Loscoe, Derbyshire GB From Eur. Site
475 Cathy Lea Toronto ON From album. BMT relapse.
476 Rakesh Gupta New Delhi India
477 Mark Stasium Portland ME Wife Sue
478 Ho-Leung Ng Oakland/Berkley CA Great researcher
479 Louis Nault Montreal QC
480 Diane Manning Looking for generic gleevec. Phillip
481 Kate Watt Montreal QC From Gleevec
482 Dave Jamrog Manchester NH From Gleevec
483 Susan Lowencamp Hartford CT On HSP70 trial
484 Cynthia Inf first. From Gleevec list
485 From Gleevec
486 Richard Soucey Waterbury CT From BMT
487 Shirley Krager
488 Mary Knotts Madison AL
489 John Doerr St. Louis MO
490 Glenn Fuller San Francisco CA trisomy 8, monosomy 7
491 Linda Baker From European site
492 Jean From Jerry's site
493 Laura Gonzalez From Jerry's site
494 Joan Clements Newport Heights CA Mary Toole's friend
495 David Roth OH Wife Ruth. 17 yrs
496 Mary McKinley Charlottesville VA From ACOR site
497 Rakesh Gupta From Gleevec
498 Scott Leslie
499 Wilma van Voorthuisen NL Met at summit
500 George Lazarowitz London ON
501 Judy Prusky Calgary AB
502 Stephanie Sylvestre Montreal QC
503 Pam May Devon UK Husband John does the email.
504 Mary Toole Mission Viejo CA
505 Miles Denham J. Aiken SC From ACOR
506 Dorothy From Gleevec
507 Steve BMT, European site. Wife is Sarah
508 Shirely Walkley Oxford UK From European site.
509 Christian Cavallero Miami FL From Miami Herald
510 Brett Ison From Miami Herald
511 John Schultz Laguna Niguel CA From ACOR
512 Jean Casey Ferndale MI Triple therapy - Gleevec
513 Terry From Europen site
514 Mary Hoglund
515 BVR Seattle WA From Gerry's site
516 HJ From Gerry's site
517 Nat
518 Maria Theresa Zenzes Mississauga ON
519 Peter Geary Aukland NZ pacific1953
520 Nancy Sutton Norway Lake ME Roland is husband
521 Grace From Europen site
522 Jacqueline Jarmusz Memphis TN Sister is Mary Ellen. Originally from Chicago
522 Mary Ellen
523 Mary Jean Hoder San Antonio TX
524 Alan Sago Father is Jim Sago
524 Jim Sago
525 Pam Truchon Germantown MD
526 Valeriano Munoz Madrid ES Spain
527 Shari Drennan ElDorado KS
528 Emile Fichault Repentigny QC
529 Bob Budynas Oahu HI
530 Richard Huffman Belton MO Dickie, vet
531 Mercedes Rodriguez Daughter is Ana
532 Hans Friessmann st.augustin Germany From Jerry's site
533 Russell Borski Broomfield CO
534 Brent Styles Blockhouse Bay NZ Dawn
535 Julie Lowsen QC
536 Bob Borland
537 Tony Davis Mom is Karyn
538 Tanya Feldman Manotick on
539 David Michaels Oakland/Berkley CA
540 Shaun Seaholm Has chromosome 9 problem
541 Ross Shirran From European site.
542 Ron Homan NC From Jerry's site. Wife is Lynn
543 Randy Provart Blaine MN
544 Theresa Migut Johnstowm PA 6 mo. On INF
545 Amy Lalonde Toronto ON
546 Syed Nasir New York NY Only 7 cells. Saba Kali
547 Pirkko KELEMAN Tampere Finland
548 Stefan DE
549 Amber Lynn Plath Menifee CA
550 Kennet DK From Jerry's list, wife is Christiana
550 Kennet Christensen Als DK From Jerry's site
551 Amy Clark Dallas TX
552 Penny Rivers Cayman Island
553 Esther Liben Montreal QC
554 Elaine Schiavo
555 Kat Miles Perth WA
556 Dawn Penny From ACOR
557 Julie Kennedy Hull QC
558 Brian Walsh Cork IRL
559 Stavros Beriatos Athens GR
560 Mark Alleman Monroe LA Relapse after 3 yrs
561 Leroy Clayton Brick NJ from Gleevec site
562 Matt Worcester Chicago IL Wife is Elizabeth
563 David Bradley Interlochen MI
564 Aaron Bullingham UK Mother is Jayne, BMT
565 Stuart Lefebvre Allen & Gail are parents
566 Andi
567 Tammy Hunt Winter Park FL hoakierollerr
568 Vinnie Falgione Pittsburgh PA
569 Janet
570 Norm 600mg
571 Anna Grimm Midland TX
572 Kathy Finnigan Cataumet MA
573 Melinda Folse Slidel Louisianna From Jerry's site, mutations
574 Helen From Jerry's site
575 Alison European site
576 Richard Schempp Neilberg SK
577 Chris Stickle Branchburg NJ
578 Sharron Wallace From Gerry's site
579 Carolyn Oehrle Louisville KY From Jerry's site
580 Lynne Frankli PA Zero after 11 weeks. Liver toxicity
581 Micheline Campeau From Cheryl
582 jhill
583 Brian Manning From European site, wife Pat posts.
584 Susan Rosenthal Miami FL
585 Jim From Gleevec list
586 Sharon Hudson MA
587 Lisa Perry
588 Larry Hicks
589 Rodney
590 Cindy LOUEY Melbourne AU
591 Sandy Butler From Jerry's site
592 Stan Ste Croix Barrie ON From Jerry's site
593 John Bonistalli Elliot City MD Wife is Dane, pregenant
594 Barbara Masters Grants Pass OR
595 Chandra Singh Mumbai India From Ferry's site
596 Ed From Jerry's site
597 Simone The Pas Manitoba (Sunny)Priscilla is mom.
598 Carl Davies PA
599 Janet Greenberg Toronto ON Met her at Winter 2004
600 Jack Hooper Canto GA Jenny's dad
601 Valorie Reid Kalamazoo MI Fronm Jerry's site
602 Glenda Smith Joplin MO Fronm Jerry's site
603 Fides Putong From Asian List via Eva
604 Valentina Gomez From Asian List via Eva
605 Phyl D Cantom MI
606 Julianne Harju MI
607 Patricia de Almeida Dever from European site
608 Marion Staplefeld Ryegate VT Moe
609 Annette Babb
610 Krithika Adimoolam Chennai India From Asian site
611 From Asian site. On inf. 12 yrs
612 Edna Boyd
613 Don Adkins Colorado Springs CO
614 Paul coonass2112
615 Elizabeth Duley Kents Store VA CCR on INF, relapsed, then Gleevec
616 Chris Woodroff Problem with email address European site
617 Ethan Christina reports. European site
618 Esther Harper European site
619 Donna Swart Auburn WA
620 Doc wants her to go off Gleevec
621 Nancy Craig Gorham ME BMT. From Jerry's site
622 Mike Cleaves Port Republic MD Wife has CML. Was on GM-CSF and INF trials.
623 Stacey Atkinson From European site
624 Sandy Weber Cincinnati OH From Asian site
625 Jill Jones Stourbridge, Midlands UK From European site
626 Matthew Loos Iowa City OW
627 Robert Jackson San Francisco CA Wife is Sharon Parker. From Jerry's site
628 Dana Burba 800 trial at MDA
629 Nadine Lim From Eva, Phillipines
630 Alen Glen Sayson From Eva, Phillipines
631 Alona Garrido From Eva, Phillipines
632 Steven Persaud NYC? NY Mother is Angelo
633 Charles Gilbert Susan Zencka's dad. Turtle
634 Juergen Karl Frankfurt DE
635 Christine Barthelemy FR Has liver toxicity
636 Jimmie Phillips Hattiesburg MS
637 Carlos Valentia Tuscon AX Cord blood, IM. From Tuscon newpaper
638 Paul Patterson Bartlesville OK Dr. wants to stop Gleevec
639 Bob Glover Hornsby AU From Asian group
640 Wayne Cox
641 Don
642 Gloria Dunford Westland MI
643 Desnee Lynne McClarnan Swansea, Wales UK From European site
644 Ruth Collins
645 Andreas Wertberg DE from Asian site
646 Amy AU From Perth, now in Georgia
647 Andrew Sklarz Yardley PA From Cheryl
648 Yvette Hyland Weston-super-Mare, Somerset UK From European. Jason's wife
649 Kathy Soloff Penn Valley PA From Asian site
650 Steen Lyngvig From European site
651 Jessie Altura Calgary AB BMT from sister.
652 Josh From Jerry's site
653 Rosanna Bernstein Miami FL Qult for Druker
654
655 Chris Lambert From Eur. Wife is Sarah
656 Mike Bernardino From Jerry's site, keep confid
657 Jeff Vierstra From Jerry's site. BMT
658 Lauren AU From Jerry's site. BMT
659 Stephan UK From Eur. BMT. Parents Neil&Sam
660 Genevieve Russo Her daughter has CML
661 Amanda Olivere Newark DE Jerry's site
662 Joan Porter Jacksonville FL
663 Both are 82. Wife has CML. 200mg
664 Maximo Olivo Venice IT From Jerry's site
665 Nasir Chestnut Ridge NY From Asian Group
666 Rory Collins
667 Lynne Nadal Vancouver WA From Jerry's site. 132 in Appreciation album
668 Elmer HU
669 Marie Chapman Frum Eur site. BMT
670 His father has CML. In appreciation album
671 Massoud
672 Cindy Paul #638 friend. Had a BMT
673 Tom From euro site. Wife Karen
674 Rosey Brenan Vancouver BC Sister is Elizabeth
675 Susie Leech Port Lincoln AU
676 Kathleen Verderber Southgate KY 6 mos in Naples, FL
677 Laura H Paducah KY From Jerry's site
678 Mark From European
679 Jerry From Jennifer's site
680 Ray Haines From Jennifer's site
681 Kennet Geihsler Houston TX Called his son
682 Monique Kuijpers NL Met at Milan meeting
683 David Pillow UK
684 Judy From European site. See Patty Preston
685 Richard Jones UK Brother has CML
685 Simon Jones UK
687
688 Ed From Jerry's site
689 Sara Byne Charlottesville NC From Jerry's site
690 Charley Morgan Ogden UT
691 Janice Jackson UK "European site. Had a mini BMT. http://homepage.ntlworld.com/dave.jackson4/homepage.htm
"
692 Lynne
693 Darlene Lawless UK From Europ site
694 Barry Stark barryhuthut from chat
695 Amanda Lane From Europ site. Wants a baby
696 Denis Hung From Asian site
697 Pamela Levine NY From Jerry's site
698 Philip Kruger Montville NJ From Jerry's site. Thank you
699 Judy Telford Melbourne AU BMT relapse after 11 years.
700 Bob Wilhelm Wife Nancy. BMS trial. Desert Tortoise.
701 Sheila Durbin Utica KY Husband is David
702 Jim Johnson
703 Dee
704 Larry Moe Newbury Park CA Relapsed on 300 mg
705 Steve Silver Montreal QC Inf 9 yrs.
706 Don Tracy Sherman PA Nam Vet
707 Christine Finsand ACOR
708 Valerie Scott ACOR. In album.
709 Karen Sos
710 Peter Stick From Jerry. BMS trial
711 Suzanne Festa CN From Asian
712 Chloe 3 yrs old
713 Morgan Blackford 6 yrs old, Michelle is mom
714 Eleanore Perkins
715 Debra Moretz
716 Jason Nagy
717 Suzanne Festa
718 Ron Lacy
719 Masoud Seyedjalali From Asian site
720 Vickie From Jerry's site
721 Geeta
722 Mary Hooker Bebton LA From PLWC ASCO site
723 Victoria From Jerry's site
724 Eoghan Gallagher Strokestown IR From European site
725 Sultan FR From Jerry's site
726 Derek Bergmann UK From European site.
727 Richard Troxel Newhall CA
728 Sergio Garcia Orange County CA
729 Susan Dale FR From BMT in France
730 Jim Simpson Winnipeg MA From European site
731 Denis Culligan Dublin IR From European site
732 Tonya Atlanta GA
733 Miles Levim BMT
734 Dee (Doreen) Hedman Duluth MI
735 Marilynn
736 Sam European site.
737 Barbara Marfleet European site.
738 Marlene Curby Low ANC. On Asian list
739 Marcia ON Marcia is wife. From Jerry'e site.
740 Joyce Davis European site.
741 David Landry Debbis is his mom
742 Stuart is husband. Eur. Site
743 Ian Prudence UK Kathy is wife. From Europ site
744 Melinda Pierce
745 Dawn Cigainero Hooks TX Husband is Chris. From ACOR
746 Nathalie Doyle Contz les Bains FR Had a baby
747 Betsy Carlin Holmdel NJ Husband is James
748 Mike Siegel Cyclist. Newspaer Article
749 m&m
750 Eva Brubaker Upland CA On BMS drug
751 Michael Herring Atlanta GA Retired military. Back to school. Eur. Site.
752 Linda Scukins European site
753 Paul Codrington Minster, Isle of Sheppey UK
754 Carolyn Bullard BMT
755 Tommy Tbone From Jerry's site. BMT relapse
756 Nancy Chando Hurley NY
757 Mark Pardy New Milton, Hamp UK From European
758 Celsey Daniels Calgary AB From Jerry
759 Tom Cripps BMS. Wife is Teresa
760 TD BMS From Jerry
761 Nadine Awde Asian
762 Rosaura Santa Orlasndo FL Eur. Site
763 Jose N
764 Teresa Tadros Tallahasse FL
765 Daniella Whittington UK Had a baby.
766 mctx Afro American
767 Bob
768 Julie Breton Mascouche QC
769 Stephanie Canton NY
770 Jacqueline
771 Adam
772 Dan
773 Philip Kaplan NY Had a BMT. 16oct03
774 Alain Branchereau Frankfurt Germany From Asian
775 Amanda Harris MI From Asian
776 Sam Blood From European
777 Bernard Davidoff From Asian
778 Eugenea Bouchia From Asian. Genie See # 113
779 Krithika Adimoolan Asian
780 Michael MUD 5 yrs ago. Great shape
781 Jonathan Mom is Fran
782 Steen Langeland dk
783 David Gulledge Birmingham Alabama Ann Jessup -Fiancee David has CML
784 Teoh Poh Tiong Singapore Malysia BMT relapse, PT on chat
785 Rodney Cole Halifax NS Turtle
786 Gordon Crawford Crewe, Cxheshire UK Did a stem cell collection
787 Dr. Shital Kiran Bangalore India Wants to father a child
788 Gay Bratton Turtle - Dec 99
789 Brenda Morelli
790 Carol Salmon Dad on BMS
791 Kit Yong Houston TX From Asian site
792 Andreas Shattler Toronto ON
793 Libby Scrivner Mobile AL
794 Christine Finsand Chatfield MN
795 Debbie Coopwood Tuscon AZ From Druke Tribute Album
796 Ruth McIntosh From Asian. On AMN107
797 Gwen Nowland Victoria BC Via BMT-18NOV03
798 Annie Kennedy Edinburgh UK Euro site
799 David Wolovitz Glem Mills PA
800 Jerry Mayfield
801 Judy J Jerry's site
802 Ricky Zhao Shanghai CH
803 Nick
804 Jim Carlson
805 Barbara Meunier
806 Kyle Hoover Wiffe Marge. had BMT, relapse, Gleevec
807 Erin Zammett New York NY Editor for Glamour mag
808 Mark Sharp WA BMT. Wife Katrina
809 Meghann Bell
810 David UK site. In trial with
811 Kay Tweety MI Black lady
812 Ron Groves From Jerry's site
813 Fjohn
814 Tom Green Bay WI From CML Hope
815 Pat Reynolds Lynnville TN via PCR
816 Tommy Cleaver Winchester VA Mom is Suzan Schabo
817 Craig Cooper UK wife is Maria
818 Andrew AU European site.
819 John Thompson Murietta CA
820 Angela Tyrell Eur. Site.
821 Geoff Thomas UK BMT. Football star.
822 Siri Jinadasa Montreal QC Met at YUL meeting
823 Phil North Somerset UK European site.
824 Thiva GR From Jerry's site. Wife is Elena
825 Peter Howlett AU hottuna_au
826 Dieter GermanyJrrr'ys site
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'Jeanie' via CMLHope
2016-10-17 21:20:50 UTC
Permalink
Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel. And yes I would look in mirror and not recognize myself. Just keep on fighting warriors. Blessings

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Gleevec has a big history of muscle cramps, especially in the hands and the legs. Gleevec also has side affects that include skin that is thin, white rings around the eyes, water retention around the eyes to name just a few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues disappeared. It was a wonderful change. I suggest you review it with your oncologist. I am under care of the University of Michigan Cancer Center, Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and family changes, etc. Sending sympathy to those whose family members have died within the past few months. It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
Topic digest
View all topics
Angie, your card - 2 Updates
Angie, your card
You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness.
18's,
Marty--
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
Back to top
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Marty Gartenberg
2016-10-17 22:17:28 UTC
Permalink
Hi,
Sorry you went through so much. However take a good look at yourself it
really shows you and me and a whole lot of other people that are fighting
their battles.

It's called a butterfly's lesson. If you like it then be sure to pass it
along.

18's,

Marty

On Mon, Oct 17, 2016 at 5:20 PM, 'Jeanie' via CMLHope <
Post by 'Jeanie' via CMLHope
Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get
up in the middle if night to walk out leg cramps. I too was put on Sprycel.
And yes I would look in mirror and not recognize myself. Just keep on
fighting warriors. Blessings
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have
died within the past few months. It's been so tough on each CMLer as we
age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> Google
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Topic digest
View all topics
<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics>
- Angie, your card
<https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0>
- 2 Updates
Angie, your card
<http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email>
You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I wanted
to thank you for your kindness.
18's,
Marty--
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
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Marty Gartenberg
2016-10-17 22:28:52 UTC
Permalink
I forgot to mention that you have to download this You will see a little
icon to the right of open with. There are three of four icons and just
slide your mose over them until you see download then click on it.
Post by Marty Gartenberg
Hi,
Sorry you went through so much. However take a good look at yourself it
really shows you and me and a whole lot of other people that are fighting
their battles.
It's called a butterfly's lesson. If you like it then be sure to pass it
along.
18's,
Marty
On Mon, Oct 17, 2016 at 5:20 PM, 'Jeanie' via CMLHope <
Post by 'Jeanie' via CMLHope
Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to
get up in the middle if night to walk out leg cramps. I too was put on
Sprycel. And yes I would look in mirror and not recognize myself. Just
keep on fighting warriors. Blessings
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have
died within the past few months. It's been so tough on each CMLer as we
age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
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- Angie, your card
<https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0>
- 2 Updates
Angie, your card
<http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email>
You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I
wanted to thank you for your kindness.
18's,
Marty--
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
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sherri swanson
2016-10-17 23:42:19 UTC
Permalink
I too have had terrible muscle cramps on Gleevec. I have also had every
side effect that Gleevec lists in its product sheet. I've been on this
medication for 14 years now and can not change do to other health issues.
At this point all of the side effects just become part of my everyday life
as I've had them for so long. They are awful, but they keep me humble.

L'chaim

Sherri
Post by Marty Gartenberg
I forgot to mention that you have to download this You will see a little
icon to the right of open with. There are three of four icons and just
slide your mose over them until you see download then click on it.
Post by Marty Gartenberg
Hi,
Sorry you went through so much. However take a good look at yourself it
really shows you and me and a whole lot of other people that are fighting
their battles.
It's called a butterfly's lesson. If you like it then be sure to pass it
along.
18's,
Marty
On Mon, Oct 17, 2016 at 5:20 PM, 'Jeanie' via CMLHope <
Post by 'Jeanie' via CMLHope
Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to
get up in the middle if night to walk out leg cramps. I too was put on
Sprycel. And yes I would look in mirror and not recognize myself. Just
keep on fighting warriors. Blessings
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have
died within the past few months. It's been so tough on each CMLer as we
age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> Google
Groups
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View all topics
<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics>
- Angie, your card
<https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0>
- 2 Updates
Angie, your card
<http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email>
You are most welcome.I fractured my 9th vertebra a month ago. I have
had to give up almost everything I do. I understand pain.May we BOTH be
dancing on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I
wanted to thank you for your kindness.
18's,
Marty--
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
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Myvety2k via CMLHope
2016-10-20 12:38:51 UTC
Permalink
Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold
soap and put it down along my legs. It dose help.

greenie


In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,
***@googlegroups.com writes:

Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get
up in the middle if night to walk out leg cramps. I too was put on
Sprycel. And yes I would look in mirror and not recognize myself. Just keep on
fighting warriors. Blessings

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center


On Sep 30, 2016, at 4:58 PM, lrc lrc <***@gmail.com_
(mailto:***@gmail.com) > wrote:




Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.

On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <***@prodigy.net_
(mailto:***@prodigy.net) > wrote:



We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have died
within the past few months. It's been so tough on each CMLer as we age or
our family members are diagnosed with other types of cancers.


Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?


Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife






On Friday, September 30, 2016 5:18 AM, "***@googlegroups.com_
(mailto:***@googlegroups.com) " <***@googlegroups.com_
(mailto:***@googlegroups.com) > wrote:






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* _Angie, your card_
(https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0) - 2 Updates

_Angie, your card _
(http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email)
ANGELYN ESDERS <***@rogers.com_ (mailto:***@rogers.com) >: Sep 30
12:20AM

You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie

From: Marty Gartenberg <***@gmail.com_ (mailto:***@gmail.com) >
To: ***@googlegroups.com_ (mailto:***@googlegroups.com)
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted
to thank you for your kindness.
18's,
Marty--
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Marty Gartenberg <***@gmail.com_ (mailto:***@gmail.com) >: Sep 29
08:45PM -0400

Angie,

There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.

Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.

Oh Angie don't worry we will get there.

18's

Marty

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ANGELYN ESDERS
2016-10-20 14:40:16 UTC
Permalink
I had wicked cramps from Gleevec.....15 years ago. A heavy yawn once got me cramps in my throat....a very unpleasant feeling!Over the years the cramps all over my body diminished and disappeared.HURRAY!
From: Myvety2k via CMLHope <***@googlegroups.com>
To: ***@googlegroups.com
Sent: Thursday, October 20, 2016 8:38 AM
Subject: Re: [CMLHope] Digest for ***@googlegroups.com - 2 updates in 1 topic

Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold soap and put it down along my legs.  It dose help. greenie In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time, ***@googlegroups.com writes:
Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had to get up in the middle if night to walk out leg cramps. I too was put on Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep on fighting warriors.  Blessings 

My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center 
On Sep 30, 2016, at 4:58 PM, lrc lrc <***@gmail.com> wrote:


Gleevec has a big history of muscle cramps, especially in the hands and the legs.   Gleevec also has side affects that include skin that is thin, white rings around the eyes, water retention around the eyes to name just a few.   I moved from Gleevec to Sprycel years ago and all the Gleevec issues disappeared.  It was a wonderful change.  I suggest you review it with your oncologist.  I am under care of the University of Michigan Cancer Center, Dr. Talpaz.  
On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <***@prodigy.net> wrote:

We're happy to hear you're on the mend, Marty.  It's been good to read other persons updates in their lives of CML and family changes, etc.  Sending sympathy to those whose family members have died within the past few months.  It's been so tough on each CMLer as we age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've posted it.  Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing multiple muscle cramps? Or have large muscle wasting? Thanks, Elizabeth Woods Nick's wife

On Friday, September 30, 2016 5:18 AM, "***@googlegroups.com" <***@googlegroups.com> wrote:



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- Angie, your card - 2 Updates
Angie, your card
| ANGELYN ESDERS <***@rogers.com>: Sep 30 12:20AM

You are most welcome.I fractured my 9th vertebra a month ago. I have had to give up almost everything I do. I understand pain.May we BOTH be dancing on tabletops by this time next year!Angie
 
From: Marty Gartenberg <***@gmail.com>
To: ***@googlegroups.com
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted to thank you for your kindness.
18's,
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| Marty Gartenberg <***@gmail.com>: Sep 29 08:45PM -0400

Angie,
 
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
 
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
 
Oh Angie don't worry we will get there.
 
18's
 
Marty
 
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ANGELYN ESDERS
2016-11-09 01:47:22 UTC
Permalink
How are you doing, Marty? Feeling  better?Ready to jitterbug yet?
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Marty Gartenberg
2016-11-09 03:35:20 UTC
Permalink
Hi Angie,

I am still not feeling well because one of the physical therapists was a
bit to aggressive and that was a few weeks ago. From then on I have been
suffering from swelling and pain so I told him that he is not what I need.
I just went to a wonderful physical therapist and I had my first meeting
with her. I less then one hour she was able to get some swelling down, so
that is a plus.

I'm not able to jitterbug but I have no desire to do that. What I would
want is to be able to wash my face with both of my hands or feed myself
without being able to lift the spoon or fork to get them into my mouth, but
I can although it hurts. Since I am left handed I usually feel more
comfortable using my left hand and arm.

My neck is getting better but I still have a very long time to go and my
range of motion has declined and probably will not get any better.

Now I am getting over with some basil skin cancer. The dermatologist did
the Moes surgery in his office. The stitches will come out on this Thursday
morning. You have to understand that I received total body radiation and
have been on immune suppressive drugs so that is why my kidneys failed and
I received a kidney transplant as well as a cataract operation. All of
these can cause skin cancers and anywhere on the head or face they
require moes surgery. I have a friend living in this community who had a
kidney transplant and in the past sixteen years he had many moes procedures.

This may be graphic but is what it looks like. At least they can usually
get these things out.


But you already know me and I usually don't like to complain.

18's,

Marty
How are you doing, Marty? Feeling better?
Ready to jitterbug yet?
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ANGELYN ESDERS
2016-11-09 03:55:38 UTC
Permalink
Sorry to hear this, Marty. You sure have a heavy load to carry. I broke a vertebra in August and I agree...the therapist is sometimes a bit rough on me. It's supposed to make you feel better, right? I think she is doing her best for me. Maybe a little less enthusiasm is needed sometimes.Sending you all sorts of best wishes that you will gradually get better and better in your mobility. Leave the jitterbugging for the time being. Take care....18'sAngie

From: Marty Gartenberg <***@gmail.com>
To: ***@googlegroups.com
Sent: Tuesday, November 8, 2016 10:35 PM
Subject: Re: [CMLHope] Marty

Hi Angie,
I am still not feeling well because one of the physical therapists was a bit to aggressive and that was a few weeks ago. From then on I have been suffering from swelling and pain so I told him that he is not what I need. I just went to a wonderful physical therapist and I had my first meeting with her. I less then one hour she was able to get some swelling down, so that is a plus.
I'm not able to jitterbug but I have no desire to do that. What I would want is to be able to wash my face with both of my hands or feed myself without being able to lift the spoon or fork to get them into my mouth, but I can although it hurts. Since I am left handed I usually feel more comfortable using my left hand and arm.
My neck is getting better but I still have a very long time to go and my range of motion has declined and probably will not get any better.
Now I am getting over with some basil skin cancer. The dermatologist did the Moes surgery in his office. The stitches will come out on this Thursday morning. You have to understand that I received total body radiation and have been on immune suppressive drugs so that is why my kidneys failed and I received a kidney transplant as well as a cataract operation. All of these can cause skin cancers and anywhere on the head or face they require moes surgery. I have a friend living in this community who had a kidney transplant and in the past sixteen years he had many moes procedures.
This may be graphic but is what it looks like. At least they can usually get these things out.   
But you already know me and I usually don't like to complain.   
18's,
Marty
On Tue, Nov 8, 2016 at 8:47 PM, ANGELYN ESDERS <***@rogers.com> wrote:

How are you doing, Marty? Feeling  better?Ready to jitterbug yet?--
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Richard H
2016-11-09 04:58:37 UTC
Permalink
I'm still thinking about you every day. Hoping for the best. I don't see
any complaining, just a lot of things to work on. The best to you each day
and hope tomorrow will always be better.

18's
Richard H.
Post by NICK WOODS
Hi Angie,
I am still not feeling well because one of the physical therapists was a
bit to aggressive and that was a few weeks ago. From then on I have been
suffering from swelling and pain so I told him that he is not what I need.
I just went to a wonderful physical therapist and I had my first meeting
with her. I less then one hour she was able to get some swelling down, so
that is a plus.
I'm not able to jitterbug but I have no desire to do that. What I would
want is to be able to wash my face with both of my hands or feed myself
without being able to lift the spoon or fork to get them into my mouth, but
I can although it hurts. Since I am left handed I usually feel more
comfortable using my left hand and arm.
My neck is getting better but I still have a very long time to go and my
range of motion has declined and probably will not get any better.
Now I am getting over with some basil skin cancer. The dermatologist did
the Moes surgery in his office. The stitches will come out on this Thursday
morning. You have to understand that I received total body radiation and
have been on immune suppressive drugs so that is why my kidneys failed and
I received a kidney transplant as well as a cataract operation. All of
these can cause skin cancers and anywhere on the head or face they
require moes surgery. I have a friend living in this community who had a
kidney transplant and in the past sixteen years he had many moes procedures.
This may be graphic but is what it looks like. At least they can usually
get these things out.
But you already know me and I usually don't like to complain.
18's,
Marty
How are you doing, Marty? Feeling better?
Ready to jitterbug yet?
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Richard H
2016-10-21 04:01:24 UTC
Permalink
I was told to put a bar at the foot of the bed where it radiated around my
feet all night. The one I really like is from a cotton picking family.
Dampen a washcloth with apple cider vinegar and dampen the spot where the
cramp is and in about 5 minutes the cramp disappears. DO NOT RUB IT IN JUST
DAMPEN THE AREA. YOU CAN ACTUALLY RUB THE SKIN OFF WHEN YOU SCRUB. I was
hurting bad and was rubbing for relief with the cloth and actually removed
a layer and stopped when it started to sting. After 14 1/2 years and
taking 300mg Gleevec I still occasionally have them.

Richard H.
Post by ANGELYN ESDERS
Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold
soap and put it down along my legs. It dose help.
greenie
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,
Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get
up in the middle if night to walk out leg cramps. I too was put on Sprycel.
And yes I would look in mirror and not recognize myself. Just keep on
fighting warriors. Blessings
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.
Post by NICK WOODS
We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have
died within the past few months. It's been so tough on each CMLer as we
age or our family members are diagnosed with other types of cancers.
Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?
Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife
<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics> Google
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<https://groups.google.com/forum/?utm_source=digest&utm_medium=email#!forum/cmlhope/topics>
- Angie, your card
<https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0>
- 2 Updates
Angie, your card
<http://groups.google.com/group/cmlhope/t/10d870a254c50426?utm_source=digest&utm_medium=email>
You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card
Hi Angie, you were so thoughtful to send me a get well card, and I wanted
to thank you for your kindness.
18's,
Marty--
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Angie,
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
Oh Angie don't worry we will get there.
18's
Marty
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Myvety2k via CMLHope
2016-10-20 15:54:39 UTC
Permalink
Wish I could say the same but, the throat that's a bummer. I know the
feeling.

greenie


In a message dated 10/20/2016 10:40:26 A.M. Eastern Daylight Time,
***@rogers.com writes:


I had wicked cramps from Gleevec.....15 years ago. A heavy yawn once got
me cramps in my throat....a very unpleasant feeling!
Over the years the cramps all over my body diminished and disappeared.
HURRAY!





____________________________________
From: Myvety2k via CMLHope <***@googlegroups.com>
To: ***@googlegroups.com
Sent: Thursday, October 20, 2016 8:38 AM
Subject: Re: [CMLHope] Digest for ***@googlegroups.com - 2 updates in
1 topic




Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold
soap and put it down along my legs. It dose help.

greenie


In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,
***@googlegroups.com writes:

Yes I had terrible cramps on Gleevec. Even had trigger finger. Had to get
up in the middle if night to walk out leg cramps. I too was put on
Sprycel. And yes I would look in mirror and not recognize myself. Just keep on
fighting warriors. Blessings

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center


On Sep 30, 2016, at 4:58 PM, lrc lrc <***@gmail.com_
(mailto:***@gmail.com) > wrote:




Gleevec has a big history of muscle cramps, especially in the hands and
the legs. Gleevec also has side affects that include skin that is thin,
white rings around the eyes, water retention around the eyes to name just a
few. I moved from Gleevec to Sprycel years ago and all the Gleevec issues
disappeared. It was a wonderful change. I suggest you review it with your
oncologist. I am under care of the University of Michigan Cancer Center,
Dr. Talpaz.

On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <***@prodigy.net_
(mailto:***@prodigy.net) > wrote:



We're happy to hear you're on the mend, Marty.
It's been good to read other persons updates in their lives of CML and
family changes, etc. Sending sympathy to those whose family members have died
within the past few months. It's been so tough on each CMLer as we age or
our family members are diagnosed with other types of cancers.


Nick's got a Zauve's O Club number, but it's been a while since we've
posted it. Does anyone have a list?


Wondered if any other persons with CML on Gleevec are experiencing
multiple muscle cramps?
Or have large muscle wasting?
Thanks, Elizabeth Woods Nick's wife






On Friday, September 30, 2016 5:18 AM, "***@googlegroups.com_
(mailto:***@googlegroups.com) " <***@googlegroups.com_
(mailto:***@googlegroups.com) > wrote:






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* _Angie, your card_
(https://us-mg6.mail.yahoo.com/neo/launch?.partner=sbc&.rand=7ooskijtbls4s#group_thread_0) - 2 Updates

() _Angie, your card _
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ANGELYN ESDERS <***@rogers.com_ (mailto:***@rogers.com) >: Sep 30
12:20AM

You are most welcome.I fractured my 9th vertebra a month ago. I have had
to give up almost everything I do. I understand pain.May we BOTH be dancing
on tabletops by this time next year!Angie

From: Marty Gartenberg <***@gmail.com_ (mailto:***@gmail.com) >
To: ***@googlegroups.com_ (mailto:***@googlegroups.com)
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted
to thank you for your kindness.
18's,
Marty--
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Marty Gartenberg <***@gmail.com_ (mailto:***@gmail.com) >: Sep 29
08:45PM -0400

Angie,

There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.

Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.

Oh Angie don't worry we will get there.

18's

Marty

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bkbarney via CMLHope
2016-11-09 06:52:25 UTC
Permalink
Dear Marty,


I am al;ways so glad to see your writing here. Like Richard, I am hoping always for the best for you... And you are right, while you have every right to complain considering all the pain and suffering you have endured, you instead lead us with your steadfast light, inspire us with your endurance...your determination to carry on, and amazing attitude ...one day at a time...I think of you often and keep you in my prayers. When I am down, I think of you in the "bubble", and the life you have had the privilege to live all these years later, still touching people's lives and hearts, inspiring them with your genuine care and deep spiritual beliefs. You are amazing Marty.


Warmest regards,


18's
Beth



-----Original Message-----
From: Richard H <***@gmail.com>
To: CMLHope <***@googlegroups.com>
Sent: Tue, Nov 8, 2016 10:58 pm
Subject: Re: [CMLHope] Marty



I'm still thinking about you every day. Hoping for the best. I don't see any complaining, just a lot of things to work on. The best to you each day and hope tomorrow will always be better.

18's
Richard H.

On Tuesday, November 8, 2016 at 9:35:26 PM UTC-6, wa2yyx wrote:

Hi Angie,


I am still not feeling well because one of the physical therapists was a bit to aggressive and that was a few weeks ago. From then on I have been suffering from swelling and pain so I told him that he is not what I need. I just went to a wonderful physical therapist and I had my first meeting with her. I less then one hour she was able to get some swelling down, so that is a plus.


I'm not able to jitterbug but I have no desire to do that. What I would want is to be able to wash my face with both of my hands or feed myself without being able to lift the spoon or fork to get them into my mouth, but I can although it hurts. Since I am left handed I usually feel more comfortable using my left hand and arm.


My neck is getting better but I still have a very long time to go and my range of motion has declined and probably will not get any better.


Now I am getting over with some basil skin cancer. The dermatologist did the Moes surgery in his office. The stitches will come out on this Thursday morning. You have to understand that I received total body radiation and have been on immune suppressive drugs so that is why my kidneys failed and I received a kidney transplant as well as a cataract operation. All of these can cause skin cancers and anywhere on the head or face they require moes surgery. I have a friend living in this community who had a kidney transplant and in the past sixteen years he had many moes procedures.


This may be graphic but is what it looks like. At least they can usually get these things out.



But you already know me and I usually don't like to complain.


18's,


Marty



On Tue, Nov 8, 2016 at 8:47 PM, ANGELYN ESDERS <***@rogers.com> wrote:


How are you doing, Marty? Feeling better?
Ready to jitterbug yet?
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